Thanks for the reply! Can’t believe I found two people at the same time! Maybe we should start our own support group!? Lol. I’d be very happy to make a group chat if anyone wanted to? I’ve learnt alot from this condition about myself and the world. As depressing as it is I also feel alot of strength because of it. We are stronger and more adaptable than we think sometimes!
17years and still walking! You give me hope. Thank you so much for sharing your story!
“There are approximately 114 to 120 documented cases of Solitary Sclerosis (SS) in medical literature”
There’s probably more undocumented in literature. I can see why it’s not studied much. I knew it was rare but wow!
Sorry Dawn for your Rare condition.
With my PPMS, I have tried to go positive and want to highlight any small achievements as Tiny Achievements as these are all quite successes that we want to face and enjoy as much as possible.
I have tried to structure my daily life with multiple achievements and it grows on me.