Thanks for everyone’s advice and input about how to get LDN licensed. We are working with various bodies in the UK with helping us achieve this. I have to say I am surprised about the lack of knowledge here about LDN. LDN is not approved for those with mental health and substance abuse problems. You are talking about Naltrexone at 50mg doses and higher which blocks the opioid receptors for a 24 hour period. Completely different to Naltrexone in LOW DOSES (low dose naltrexone).
Naltrexone is not a new drug, it does not need to go through the whole process one needs to do when developing a new drug. It is already approved at 50mg, we want to get it approved and recognised at doses of 4.5mg and less for autoimmune diseases and cancers (not just MS)
LDN is already available on the NHS - some can get it, some can’t. Why is that? Answers to that will explain why we’re campaigning to get this drug more widely accepted and used on the NHS. This isn’t a ‘LDN is better than any treatment you could possibly be offered’ effort - but it’s a damn good biotherapy that at long last is finally being recognised as such.
I appreciate everyone sharing their views on the process involved, but right now can I ask everyone to stick to the request on this thread? Debates about LDN are fascinating and important to get people to understand how it works so they can make an informed choice as to whether or not they would like to try it as part of their treatment, but this thread was put up in the hopes we could get some support with notifying MPs about the inauguration of the LDN APPG taking place on 13th September.
In the next two weeks we are going to be extremely busy working with those who will be attending the APPG so if we could delay a discussion about LDN until after this meeting I’d be grateful.
Right now, we really need some help with getting MPs notified about the LDN APPG to encourage more participation.
Thank you - and big thanks to those on here who have already contacted Andrew and advised they have sent the email off to their MP and who their MP is - this is a HUGE help and one that is greatly appreciated.
Jayne