We’ve been arguing about this with varying degrees of anger/disbelief/incredulity/ resignation ever since 2009. (Stuff happened, people posted, huge arguments followed, posters were banned and it’s best not to go there).
I’ve also been on LDN. It was a great help with symptoms, but like Chocorange (Ellie) it didn’t prevent a terrible relapse. Yes, I think it’s a very good thing to have an open mind. There’s nothing to stop you trying LDN along with beta interferon or Copaxone and there’s a few people on Tysabri who have stuck with their LDN. I took Rebif and LDN for 2 years and then all my lovely LDN benefits just disappeared. It’s sad, as I felt very good whilst taking LDN.
Comparing people’s experience of PPMS as opposed to RRMS doesn’t work. Yes, it’s still MS, but that’s where the similarities end, in terms of treatments to modify the course of the disease.
LDN isn’t a DMD. Not one person who has RRMS who has replied here has said so - but maybe, for PPMS it works in a different way. I think it does. I’m not a doctor, but I do know people with PPMS and SPMS who swear by LDN and I’m very happy for them. I also agree that for those people, it should be available on the NHS.
LDN isn’t recognised as a treatment in all countries. It doesn’t exist in Spain, where I live. Weird, but true. It’s cheaper here to make my own and buy Naltrexone powder without a prescription. It is an odd situation, that people with MS, have to find a pharmacy where either drug addicts buy Naltrexone, or one where the pharmacist knows you well.