hey @Snowyzlala , thanks for this. you’re not alone with this, either. given so much of (at least my own) MS experience is invisible, it leaves you with an odd feeling of not really fitting in to either side of things, disability wise. like you, I spend a lot of time exhausted and have to plan life in a way that is necessary, but quite isolating.
there was an unpleasant experience at a concert recently when I had a fold-up walking stick in my should bag, in case of a flare up, the sight of which seemed to rather disgruntle and irritate another, older guy with also with a stick, and unwanted comments were made. you would have thought another MS would have known better
I am selective with who I tell, and what. it depends on where it is necessary to do so and whether I can trust the individual
fwiw, the invisible battles of MS - whether physical or mental - are amongst the toughest, in my experience. so I wish you all the best with it - take care