I have just been diagnosed with FND ( I think) by neurologist, but I’ve only had blood tests and a physical exam done. Can FND be diagnosed without an MRI being done to exclude MS ?
Neurologist basically examined me and sent me for blood tests then the next thing I heard was a letter from them saying ‘Blood tests were done to look for signs of inflammation(ESR), muscle damage (Creatine kinase) and auto-antibodies. These were all normal. Your presentation would be most in keeping with a functional neurological disorder’ blah blah blah, then a wee bit directing me to the website www.neurosymptoms.org, then ‘you will see in the pain section that fibromyalgia is included within the spectrum of functional neurological disorders’.
I am unsure whether they are saying I have FND, or Fibromyalgia, or both ?
Letter then says they don’t need to see me again but have referred me to physio.
Shouldn’t I have had an MRI to help rule out MS ? And am I expected to see only GP for further help/ care/ medication ?
So confused ! I assumed I would remain under neurologist care ?
Also I have been on reduced duties at work ( but not off sick) since I told my boss I was unfit to practice but didn’t need to be off sick, just on amended duties . He said as long as I said I wasn’t fit he couldn’t allow me to work clinically ( he was very reluctant and told me it was HR who advised him he couldn’t just send me home sick) and he put in an emergency referral to occupational health. They agreed I wasn’t fit for normal duties but could continue with non-clinical duties as I was managing this.I have a follow up occupational health appointment due next month. What exactly should I tell them ? I still can’t do my usual job (A&E nurse) with constant pain, limited mobility, mental fog, inability to concentrate or remember things and my manager is saying we’d have to arrange a formal meeting with HR and Occ Health to discuss a way forward as he can’t keep paying me my usual wage (i.e nurse wage and not a receptionist wage )and also having to pay another nurse to cover my shifts ! I’m sure he’s trying to go the route of ’ incapable to fulfill role employed for’ to try to get rid of me. I’ve told my union everything and am waiting until I have my occupational health appointment to see what they recommend going forward and once I have a date for the formal meeting I’ll ask for a union rep to accompany me.
Meantime I also took letter to GP to see what they thought and they also said it was very unclear but they took it to mean I definitely have FND and possibly fibro and have started me on Amitriptyline.
I’m not convinced the neurologist can discount MS based solely on examination and bloods ?
All info and advice welcome.