Totally aagree Dragon. These types of articles make me feel inadequate too. Maybe I’m not trying hard enough? Maybe I’m being defeatist? Maybe I should push myself harder? Maybe I’m giving up too easily and will seize up! Dry up! Shrivel up! Become a bed bound, house bound blob!!!
ah yes ,I’d best buy new jogging suit and trainers tomorrow. I’ll call on my friend Lazarus en route…
why do the folk in wheelchairs always look as if they’ve just hop-skipped-jumped before sitting in said chair. and why are they always smiling.
I’m just skim reading MS Matters - the only bit that caught my attention is a letter about cold feet.
Nothing else relates to me. I think the mag has a bias towards RRMSers.
Probably folk who are too busy to read it.
Hiya krak Can’t answer first but 2nd is because I can do that and I am happy! Aye daily life is trying but it is for everybody. I like to listen and learn. Folk don’t talk with you if you are a grumpy moaning git! Life is hard enough to get washed and dressed without being ignored too! Humans are too interesting to ignore…as for birds cats and dogs…an absolute delight to watch and learn from… Ellie
Oh I only have this iPad on loan and won’t be getting one, gggrrr!
block text is far too frustrating!
ellie
Hello there, now then, who is right, the misinformed the well intentioned, or us, why complain if one, two, or hundreds, say they know someone or you’ll get better, big deal, have you even thought that the person doesn’t know how to respond to a disability that even doctors can’t fathom it out, why not just go with the flow, nod your head, and talk of the weather, the state of a football/rugby/cricket/netball club, why get stressed, life could be a lot worse, you could be a /Arsenal/Liverpool/Man City/Chelsea/Man Utd/Rangers fan, then life would really be bad for you, Brian
brain
nod yer heid and blab re weather?! i know u r in same country as me-its RAINING!!!
ellie
ps dont know a thing re footie but darts…
Good evening Ellie, dinny get angry but, here in God’s country, that is the picturesque, friendly, everyone welcome, quiet, welcoming village of Winchbugh, which is near to Lithgie, Broxburn, Livingston, Cheesetoon (Kirkliston) it’s nice and sunny, has been most of the day, it is hard, but I’ve nothing to do all day but top up the tan, sorry, Brian
And I thought it was just me!
40,000 - it’s a lot of people being made to feel inadequate through something none of us did anything to bring on ourselves, isn’t it?
In some ways, I have sympathy for the MS Society, as they have to represent a really broad church.
But pretending everything in the garden is rosy just renders some of us with more advanced MS unrepresented if not invisible, no?
Jo
No Jo, you are not the only one.
Why do we feel under represented in MS publications as well?
I read so many sad tales on this Forum which are not mentioned anywhere else.
There is a hidden truth and reality here.
Fay
RE: “Yes Fay, the BBC spread the views, but the MS Soc start some of them. I am fed up with the inspirational articles about the wonder woman with MS. You know the sort of thing …”
Just wondered about the £28 million the MS Society raises - does any of this cash come from government grants or drug companies???
Does anyone know about this?? I think it is important to know where the money is coming from.
Fay
Well this mser went wedding dress shopping with daughter today and I’m absolutely shattered. All I did was get wheeled about and sat and smiled at over helpful dress shop staff and Ooh! and Ah! At numerous dresses but I feel as if I have ran a marathon. Is that inspirational enough?
Mags xx
Why not write to the BBC and complain, and say you are misrepresenting a large section of people who have MS. I would be up for it if they want to come to my house and see how i live all day and every day.
Mind you I dont watch the BBC lol.
I had a wonderful morning yesterday Brian. Every morning i take my dog over our park i am so lucky as we live right opposite a very large football grounds and the park adjacent is bigger then 3 pitches. I start up the old scooter, and off we go, negotiating a small road, and then we are off. Yesterday it was FANTASTIC, the sun was out, and on either side of our very large park are two railway lines. One train on the bottom line had stopped for ages, so me and dog went off to investigate. It was a brand new cross country train from EDINBURGH, it was spanky new. I was so excited you see i love trains even being a mere female lol.
It was so sparkly and I was wondering what on earth it was doing there as i had never seen one before. I wonder if the passengers had come from scotland where i have never been but would love to go.
Anyway i waved at them all and they waved back smiling at me. Then off it went, and before i could draw breath another one the same came from the other direction, then another opposite, it went on for over 30 minutes i counted 5 and then on the top line a lovely black new looking train on the top line. I was in heaven, and other people walking their dogs joined me and we ended up chatting away for ages about trains and such like, it was such a lovely morning and not one person treated me as though I was disabled.
I felt rejuvenated and sad when i got back to the house, to once again sit on my reclner lol. I love people and meeting people, and you can make a good day out of nothing if we have the mind to it.
I never bother about what people might think about me, and when i go out in my wheelchair with my care worker i always end up chatting to everyone with my WIDE beaming toothless smile lol. No one knows what is wrong with me, i dont have MS stamped on my forehand, they just treat me as a normal human being. Maybe its because i am a communicator and love to chat lol.
I would love to visit scotland, i have been all over the world but not there. Ever since I watched Outlander recently i have a real hankering to go there.
Anyway its going to be warm again today, and I am excited as my best friend my neighbour is just left to hospital for a cesarian she is having her baby boy delivered as she is diabetic and he wont turn the naughty lad. So today should be a wonderful day.
Life is too short to worry about what other people think, who cares really. I always say there are worse people at sea then me, so many disabilities so many people sick.
I shall be out this morning with my careworker shopping in my wheelchair which is jazzed up with my big smiling face. I wonder who we will meet today to chat with lol.
I love it when people are just happy it makes me happy too. (Even if i feel like poop lol). x
FABULOUS DAHLING, is it your daughters wedding Mags, you must be so excited. Yes when i go out and even being pushed about i feel like i have pushed myself lol…x
I’ve complained about the inspirational articles in MS Matters and I’m sticking to that. There have been gripes about the cheery pictures of people in wheelchairs, which I can’t completely agree with. So often I have seen people in wheelchairs looking absolutely miserable. I’m not a regular wheelchair user. In fact it’s years since I’ve had to use one (I’m using a rollator more often, though, and I’m thinking of asking Hubby to check if my old scooter still works). When I did use one I tried not to look as if I was going to a funeral.
I’m with Crazy Chick on this one. A friendly smile when I’m out costs nothing. There are people who look beyond the mobility aids and see the person, not the scooter/wheelchair.