# \#treatments-and-therapies **URL:** https://forum.mssociety.org.uk/tag/treatments-and-therapies/14.md [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) --- ## [Hair texture change post Ocrevus / Methylprednisolone](https://forum.mssociety.org.uk/t/hair-texture-change-post-ocrevus-methylprednisolone/80378)
**Author:** [@stewardcity](https://forum.mssociety.org.uk/u/stewardcity)\ **Replies:** 18\ **Last updated:** [6 October 2026 15:24 UTC](https://forum.mssociety.org.uk/t/hair-texture-change-post-ocrevus-methylprednisolone/80378 "2026-10-06T15:24:29Z")
\*\* Updated 12 October 2026 \*\* This is my personal experience and I remain mindful that side effects vary between patients. Unsure whether my hair changes are related to Ocrevus or its Methylprednisolone premedication. A… --- ## [StepNura for foot drop](https://forum.mssociety.org.uk/t/stepnura-for-foot-drop/81597)
**Author:** [@douglas87](https://forum.mssociety.org.uk/u/douglas87)\ **Replies:** 18\ **Last updated:** [24 September 2026 10:17 UTC](https://forum.mssociety.org.uk/t/stepnura-for-foot-drop/81597 "2026-09-24T10:17:17Z")
I have seen a lot of ads on my social media recently for a product called StepNura which uses EMS to help the muscles with foot drop. I am really struggling with foot drop at the moment and have done for many years. It’s… --- ## [Fampridine in the North East (Northumberland / Newcastle)?](https://forum.mssociety.org.uk/t/fampridine-in-the-north-east-northumberland-newcastle/81756)
**Author:** [@tom.morgan](https://forum.mssociety.org.uk/u/tom.morgan)\ **Replies:** 0\ **Last updated:** [14 September 2026 11:29 UTC](https://forum.mssociety.org.uk/t/fampridine-in-the-north-east-northumberland-newcastle/81756 "2026-09-14T11:29:56Z")
Is there anyone here who has managed to source Fampridine privately in the North East? Seem to be going round in circles trying to find someone able to assess and prescribe it, as it doesn’t seem like there are any MS-sp… --- ## [Taking sleeping tablets to stay asleep for longer than 2 hours!](https://forum.mssociety.org.uk/t/taking-sleeping-tablets-to-stay-asleep-for-longer-than-2-hours/81668)
**Author:** [@lajuice2424](https://forum.mssociety.org.uk/u/lajuice2424)\ **Replies:** 2\ **Last updated:** [27 August 2026 19:44 UTC](https://forum.mssociety.org.uk/t/taking-sleeping-tablets-to-stay-asleep-for-longer-than-2-hours/81668 "2026-08-27T19:44:10Z")
I’m thinking of asking my GP to perscribe sleeping tablets so that I can psych my bladder to not wake me up every 2 hours for a ‘mini’ wee! lol Sorry, TMI I know - but I am getting so worn out with interrupted sleep. H… --- ## [Copaxone - Injection site reactions and Plegrady](https://forum.mssociety.org.uk/t/copaxone-injection-site-reactions-and-plegrady/81601)
**Author:** [@sue.ives2565](https://forum.mssociety.org.uk/u/sue.ives2565)\ **Replies:** 1\ **Last updated:** [12 August 2026 21:19 UTC](https://forum.mssociety.org.uk/t/copaxone-injection-site-reactions-and-plegrady/81601 "2026-08-12T21:19:36Z")
Hi, I’m new the forum and any help would be really appreciated. I was diagnosed with RR MS in 2019 - aparently I have had it for years and never knew! I started Copaxone injections in Oct 2025. Apart from the odd brui… --- ## [Ocrevus side effects - sensation of bruising](https://forum.mssociety.org.uk/t/ocrevus-side-effects-sensation-of-bruising/81581)
**Author:** [@sjs1971](https://forum.mssociety.org.uk/u/sjs1971)\ **Replies:** 2\ **Last updated:** [12 August 2026 20:44 UTC](https://forum.mssociety.org.uk/t/ocrevus-side-effects-sensation-of-bruising/81581 "2026-08-12T20:44:03Z")
I had my first sub cut Ocrevus injection on Thursday (switching from ofatumumab); had a strong steroid flush that has now subsided, but since yesterday I feel like I’m bruised all over. Every bit of me hurts to touch. No… --- ## [Nervous about starting Baclofen](https://forum.mssociety.org.uk/t/nervous-about-starting-baclofen/81528)
**Author:** [@rachel.sian.hart](https://forum.mssociety.org.uk/u/rachel.sian.hart)\ **Replies:** 4\ **Last updated:** [27 July 2026 06:32 UTC](https://forum.mssociety.org.uk/t/nervous-about-starting-baclofen/81528 "2026-07-27T06:32:28Z")
Hi, I am having trouble with mobility and finding it harder to get up and move after anyone sat still. All my muscle no matter how much I stretch is never enough. I can’t walk that far before having to stop. My drop … --- ## [Mavenclad (Cladribine) DMT - here we go!](https://forum.mssociety.org.uk/t/mavenclad-cladribine-dmt-here-we-go/80182)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 23\ **Last updated:** [9 July 2026 17:48 UTC](https://forum.mssociety.org.uk/t/mavenclad-cladribine-dmt-here-we-go/80182 "2026-07-09T17:48:01Z")
Received my Mavenclad (Cladribine) medication and am starting my first dose today :blush: Bring it on MS! :oncoming\_fist:t3: Has anyone taken this DMT, or is currently taking this one? I’ve heard a lot of good things, s… --- ## [Ponvory and ENT infections](https://forum.mssociety.org.uk/t/ponvory-and-ent-infections/79085)
**Author:** [@sazg140](https://forum.mssociety.org.uk/u/sazg140)\ **Replies:** 2\ **Last updated:** [10 May 2026 08:57 UTC](https://forum.mssociety.org.uk/t/ponvory-and-ent-infections/79085 "2026-05-10T08:57:34Z")
My MS journey is long (15+ years) and convoluted (I was ‘forgotten’ by the medical profession for 10 years!), suffice to say I started Ponvory treatment just after Christmas. My MS does not, generally, affect my mobility… --- ## [Pain control in MS](https://forum.mssociety.org.uk/t/pain-control-in-ms/81041)
**Author:** [@graham5110466](https://forum.mssociety.org.uk/u/graham5110466)\ **Replies:** 3\ **Last updated:** [28 March 2026 11:01 UTC](https://forum.mssociety.org.uk/t/pain-control-in-ms/81041 "2026-03-28T11:01:19Z")
Hi all, I was diagnosed with RRMS about 18 months ago but was also diagnosed with clinical isolated syndrome about 10yr ago so have been living with MS for just as long. Im on alot of meds for chronic pain control but i… --- ## [Neuro-Physio and MS Counsellor](https://forum.mssociety.org.uk/t/neuro-physio-and-ms-counsellor/80868)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 9\ **Last updated:** [1 March 2026 15:33 UTC](https://forum.mssociety.org.uk/t/neuro-physio-and-ms-counsellor/80868 "2026-03-01T15:33:47Z")
My MS Nurse has kindly made referrals for me to see a Neuro-Physiotherapist for an assessment, and hopefully get guidance on mobility and weakness issues I’m dealing with, and also a MS Counsellor for mood issues and to … --- ## [Should I be worried? Post-Infusion new symptoms](https://forum.mssociety.org.uk/t/should-i-be-worried-post-infusion-new-symptoms/80374)
**Author:** [@airdrop-geckos.4d](https://forum.mssociety.org.uk/u/airdrop-geckos.4d)\ **Replies:** 8\ **Last updated:** [26 February 2026 12:05 UTC](https://forum.mssociety.org.uk/t/should-i-be-worried-post-infusion-new-symptoms/80374 "2026-02-26T12:05:56Z")
Hello, I had my third (or second - basically my first full dose!) of Ocrevus at the end of September. Although my usual symptoms have remained the same, only flaring when tired or stressed, I’ve developed some new muscle… --- ## [Treatment postcode lottery exposure](https://forum.mssociety.org.uk/t/treatment-postcode-lottery-exposure/80782)
**Author:** [@Giova](https://forum.mssociety.org.uk/u/Giova)\ **Replies:** 2\ **Last updated:** [31 January 2026 14:30 UTC](https://forum.mssociety.org.uk/t/treatment-postcode-lottery-exposure/80782 "2026-01-31T14:30:08Z")
This morning on the national news was a story about a new drug for MND. It’s an effective life changing treatment. Availability is determined by a postcode lottery! Why can’t we get exposure for the postcode lottery of … --- ## [Cladribine (Mavenclad)](https://forum.mssociety.org.uk/t/cladribine-mavenclad/80270)
**Author:** [@Kat.P](https://forum.mssociety.org.uk/u/Kat.P)\ **Replies:** 10\ **Last updated:** [23 January 2026 19:01 UTC](https://forum.mssociety.org.uk/t/cladribine-mavenclad/80270 "2026-01-23T19:01:52Z")
Hi everyone, I was recently diagnosed with MS at the beginning of September and my consultant has suggested that I begin taking Cladribine. I was wondering what other people’s experiences were with taking this? --- ## [Beechband](https://forum.mssociety.org.uk/t/beechband/80313)
**Author:** [@Dlroberts65](https://forum.mssociety.org.uk/u/Dlroberts65)\ **Replies:** 8\ **Last updated:** [10 January 2026 17:39 UTC](https://forum.mssociety.org.uk/t/beechband/80313 "2026-01-10T17:39:46Z")
Hi, I’ve not been on here for a while, I hope to find you all as well as you can be. Has anyone heard/tried the ‘Beechband’ if so how did you get on with it, it’s not just for Parkinson’s. Look forward to your replies. … --- ## [Newly diagnosed- so much to digest](https://forum.mssociety.org.uk/t/newly-diagnosed-so-much-to-digest/80640)
**Author:** [@NewMS](https://forum.mssociety.org.uk/u/NewMS)\ **Replies:** 5\ **Last updated:** [30 December 2025 19:52 UTC](https://forum.mssociety.org.uk/t/newly-diagnosed-so-much-to-digest/80640 "2025-12-30T19:52:32Z")
I’ve just been diagnosed with MS following optic neuritis, nil other symptoms other than a year of intermittent patch of numbness over my stomach associated with stress. MRI showed multiple lesions and moderate plaque lo… --- ## [MS Diagnosis - Symptoms & Treatment](https://forum.mssociety.org.uk/t/ms-diagnosis-symptoms-treatment/80638)
**Author:** [@ornaghc](https://forum.mssociety.org.uk/u/ornaghc)\ **Replies:** 7\ **Last updated:** [27 December 2025 15:52 UTC](https://forum.mssociety.org.uk/t/ms-diagnosis-symptoms-treatment/80638 "2025-12-27T15:52:52Z")
Hi, I’m 25 and received my MS diagnosis on 18/12/25. I partly expected it due to my symptoms but hearing it confirmed still came as a shock and I’m not 100% sure I’ve even processed this yet. At my consultation last we… --- ## [Tecfidera switch to generic Dimethyl Fumarate](https://forum.mssociety.org.uk/t/tecfidera-switch-to-generic-dimethyl-fumarate/78197)
**Author:** [@KateJonjo](https://forum.mssociety.org.uk/u/KateJonjo)\ **Replies:** 7\ **Last updated:** [26 December 2025 16:02 UTC](https://forum.mssociety.org.uk/t/tecfidera-switch-to-generic-dimethyl-fumarate/78197 "2025-12-26T16:02:52Z")
Good evening, everyone. I’ve been on Tecfidera since a bad injection site reaction whilst using copaxone. I’ve had a pretty good experience on Tecfidera, and whilst I’ve still experienced symptoms, they have been relati… --- ## [Extended Prolonged Fasting Success](https://forum.mssociety.org.uk/t/extended-prolonged-fasting-success/80620)
**Author:** [@karlerik.heuer](https://forum.mssociety.org.uk/u/karlerik.heuer)\ **Replies:** 1\ **Last updated:** [18 December 2025 13:14 UTC](https://forum.mssociety.org.uk/t/extended-prolonged-fasting-success/80620 "2025-12-18T13:14:48Z")
In 2022 a friend of mine recommended that I try fasting because I had become bedridden over the Christmas holidays of 2021. Diagnosed in 2018. I did some research and found the study referenced on this website regarding… --- ## [Mavanclad & SPMS](https://forum.mssociety.org.uk/t/mavanclad-spms/80538)
**Author:** [@Dollydaydream](https://forum.mssociety.org.uk/u/Dollydaydream)\ **Replies:** 3\ **Last updated:** [21 November 2025 11:42 UTC](https://forum.mssociety.org.uk/t/mavanclad-spms/80538 "2025-11-21T11:42:12Z")
After 9 years of no support or neurological appointments (long story) I’ve finally been seen by a neurologist, who has now left me confused! I’ve had the post approved letter and it seems to contradict my diagnosis of se… --- ## [Cold Water Swimming?](https://forum.mssociety.org.uk/t/cold-water-swimming/80293)
**Author:** [@airdrop-geckos.4d](https://forum.mssociety.org.uk/u/airdrop-geckos.4d)\ **Replies:** 9\ **Last updated:** [5 November 2025 15:24 UTC](https://forum.mssociety.org.uk/t/cold-water-swimming/80293 "2025-11-05T15:24:18Z")
Hello, I have RRMS and currently on Ocrevus following two relapses last year (optic neuritis, intense nerve pain in my hands and fingers, numbness in my torso, fatigue, tingling feet, muscle spasms). I’ve been left with… --- ## [Negativatity in my neurologist](https://forum.mssociety.org.uk/t/negativatity-in-my-neurologist/80362)
**Author:** [@viv.ward61](https://forum.mssociety.org.uk/u/viv.ward61)\ **Replies:** 6\ **Last updated:** [17 October 2025 14:17 UTC](https://forum.mssociety.org.uk/t/negativatity-in-my-neurologist/80362 "2025-10-17T14:17:34Z")
I have ppms which is obviously difficult to cope with but I exercise have a good diet etc .I have bilateral foot drop have AFO and FES device but my Achilles tendons are tight and dorsiflexion movement limited .I have re… --- ## [Worse on Ocrevus](https://forum.mssociety.org.uk/t/worse-on-ocrevus/79606)
**Author:** [@pistolpjronu](https://forum.mssociety.org.uk/u/pistolpjronu)\ **Replies:** 1\ **Last updated:** [7 October 2025 07:49 UTC](https://forum.mssociety.org.uk/t/worse-on-ocrevus/79606 "2025-10-07T07:49:45Z")
I have been on Zeposia since I was diagnosed in 2022. I was doing fine but had a relapse over the summer. I went back to my baseline but my nuero reccomended switching to Ocrevus. I had my first infusion in December … --- ## [Injection problem](https://forum.mssociety.org.uk/t/injection-problem/80236)
**Author:** [@Nk15](https://forum.mssociety.org.uk/u/Nk15)\ **Replies:** 0\ **Last updated:** [10 September 2025 11:23 UTC](https://forum.mssociety.org.uk/t/injection-problem/80236 "2025-09-10T11:23:41Z")
I had been having trouble getting the cap off the needle with my injection as I’m having a bit of trouble with arthritis in my hand. After asking 4 nurses (two retired) I have worked it out myself. Use a latex glove to… --- ## [Side effects from Plegridy](https://forum.mssociety.org.uk/t/side-effects-from-plegridy/77127)
**Author:** [@reemtrivedi](https://forum.mssociety.org.uk/u/reemtrivedi)\ **Replies:** 10\ **Last updated:** [4 September 2025 11:26 UTC](https://forum.mssociety.org.uk/t/side-effects-from-plegridy/77127 "2025-09-04T11:26:20Z")
Hello Everyone! Appreciate your advice. I have been taking Plegridy since July 19 and with my first injection it seemed fine. Then with my second one I think maybe I locked it so that’s why I didn’t see the green tick. … --- ## [New to the MS Club and DMT](https://forum.mssociety.org.uk/t/new-to-the-ms-club-and-dmt/79599)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 7\ **Last updated:** [15 August 2025 08:29 UTC](https://forum.mssociety.org.uk/t/new-to-the-ms-club-and-dmt/79599 "2025-08-15T08:29:07Z")
Hi everyone, I received my diagnosis today of relapsing-remitting MS. Apart from crying in the nurse’s arms outside the consultant’s room, I think I dealt with it quite well… Doctor would like to put me on Mavenclad, a… --- ## [Kesimpta loading doses!](https://forum.mssociety.org.uk/t/kesimpta-loading-doses/78323)
**Author:** [@sophieanne87](https://forum.mssociety.org.uk/u/sophieanne87)\ **Replies:** 10\ **Last updated:** [12 July 2025 08:51 UTC](https://forum.mssociety.org.uk/t/kesimpta-loading-doses/78323 "2025-07-12T08:51:11Z")
I am due to start Kesimpta very soon, and I am so worried about the loading doses due to ppl saying they have felt horrendous. I am reading horror stories on line and its freaked me out to the point where I dont want to … --- ## [Steroids for relapse](https://forum.mssociety.org.uk/t/steroids-for-relapse/79731)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 3\ **Last updated:** [21 June 2025 10:18 UTC](https://forum.mssociety.org.uk/t/steroids-for-relapse/79731 "2025-06-21T10:18:31Z")
Happy Thursday everyone, Currently having a short course of intravenous steroids as a day patient (Methylprednisolone 1 g daily intravenously for three days), for prolonged recent relapse - on day 2 of 3 and all going w… --- ## [Alternatives](https://forum.mssociety.org.uk/t/alternatives/79661)
**Author:** [@carey.cb](https://forum.mssociety.org.uk/u/carey.cb)\ **Replies:** 5\ **Last updated:** [12 June 2025 17:44 UTC](https://forum.mssociety.org.uk/t/alternatives/79661 "2025-06-12T17:44:39Z")
Hi I am prediagnosis but pretty likely to be MS with chronic myelopathy, inflammation and lesions at t4. While I wait for a lumbar puncture does anyone have any advice regarding alternative treatments? I’m thinking mas… --- ## [Gabapentin 300mg](https://forum.mssociety.org.uk/t/gabapentin-300mg/62136)
**Author:** [@Jaysay87](https://forum.mssociety.org.uk/u/Jaysay87)\ **Replies:** 9\ **Last updated:** [11 June 2021 14:52 UTC](https://forum.mssociety.org.uk/t/gabapentin-300mg/62136 "2021-06-11T14:52:35Z")
Hi i was diagnosed in January 2021 had my first relapse in March still having it i finished my 5 day of 500mg steriods now they want to pop me on Gabapentin 300mg has anyone taken this and what was their side effects if … [Next page](https://forum.mssociety.org.uk/tag/treatments-and-therapies/14.md?match_all_tags=true&page=1&tags%5B%5D=treatments-and-therapies)