# \#living-with-ms **URL:** https://forum.mssociety.org.uk/tag/living-with-ms/3.md [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) --- ## [How to manage on your own](https://forum.mssociety.org.uk/t/how-to-manage-on-your-own/81914)
**Author:** [@peachymama](https://forum.mssociety.org.uk/u/peachymama)\ **Replies:** 10\ **Last updated:** [21 October 2026 09:44 UTC](https://forum.mssociety.org.uk/t/how-to-manage-on-your-own/81914 "2026-10-21T09:44:26Z")
Just decided to post to see if anyone was in a similar situation or had any good advice. I’m 47, I live on my own, have no partner or children, no real supportive friends or work colleagues, and unfortunately I never sh… --- ## [Birthdays.](https://forum.mssociety.org.uk/t/birthdays/81690)
**Author:** [@mazmiller111](https://forum.mssociety.org.uk/u/mazmiller111)\ **Replies:** 6\ **Last updated:** [19 October 2026 12:17 UTC](https://forum.mssociety.org.uk/t/birthdays/81690 "2026-10-19T12:17:42Z")
Today is my birthday, I looked on here & seen there are a few birthdays today so Happy Birthday fellow warriors i hope you had your best day, We went for afternoon tea. My other half does not take photos so I’m not in t… --- ## [MS Catch-Up - Hello!](https://forum.mssociety.org.uk/t/ms-catch-up-hello/81079)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 4\ **Last updated:** [16 October 2026 11:08 UTC](https://forum.mssociety.org.uk/t/ms-catch-up-hello/81079 "2026-10-16T11:08:09Z")
Hello everyone, Happy hump day :two\_hump\_camel: I just thought I would check in and see how everyone is doing? I think everyone around me is sort of fed up of me talking about MS, or things I’m struggling with, so thou… --- ## [Disabled person’s railcard](https://forum.mssociety.org.uk/t/disabled-person-s-railcard/80286)
**Author:** [@alison100](https://forum.mssociety.org.uk/u/alison100)\ **Replies:** 21\ **Last updated:** [12 October 2026 10:53 UTC](https://forum.mssociety.org.uk/t/disabled-person-s-railcard/80286 "2026-10-12T10:53:37Z")
Does anyone have recent experience of applying for one? I’ve heard mixed messages: some people say that an MS dx does the trick (I have had one of those for a long time), others that you have to be in receipt of certain … --- ## [Getting around in my home](https://forum.mssociety.org.uk/t/getting-around-in-my-home/81568)
**Author:** [@jenny.latham](https://forum.mssociety.org.uk/u/jenny.latham)\ **Replies:** 12\ **Last updated:** [6 October 2026 09:33 UTC](https://forum.mssociety.org.uk/t/getting-around-in-my-home/81568 "2026-10-06T09:33:40Z")
Hi what does everyone use to get around in their home? I use a crutch and lean on furniture and door frames but I am getting pain in my wrist and shoulder using the crutch I have foot drop can’t walk with a Rollator or Z… --- ## [Watch recommendations](https://forum.mssociety.org.uk/t/watch-recommendations/80022)
**Author:** [@lmtegg](https://forum.mssociety.org.uk/u/lmtegg)\ **Replies:** 1\ **Last updated:** [26 September 2026 19:10 UTC](https://forum.mssociety.org.uk/t/watch-recommendations/80022 "2026-09-26T19:10:17Z")
Hi does anyone have any recommendations for watches with call option rather than button for sos/ fall detection please? Thanks --- ## [Help taking bins out from 1 up flat](https://forum.mssociety.org.uk/t/help-taking-bins-out-from-1-up-flat/81809)
**Author:** [@pjoh](https://forum.mssociety.org.uk/u/pjoh)\ **Replies:** 3\ **Last updated:** [25 September 2026 12:09 UTC](https://forum.mssociety.org.uk/t/help-taking-bins-out-from-1-up-flat/81809 "2026-09-25T12:09:06Z")
Hi, I live in Scotland, Glasgow. I live one up and have RRMS. I am independent and move around mostly ok (sometimes with a crutch) but I truly suffer badly when it comes to taking my bin out. I try to do it in smaller s… --- ## [StepNura for foot drop](https://forum.mssociety.org.uk/t/stepnura-for-foot-drop/81597)
**Author:** [@douglas87](https://forum.mssociety.org.uk/u/douglas87)\ **Replies:** 18\ **Last updated:** [24 September 2026 10:17 UTC](https://forum.mssociety.org.uk/t/stepnura-for-foot-drop/81597 "2026-09-24T10:17:17Z")
I have seen a lot of ads on my social media recently for a product called StepNura which uses EMS to help the muscles with foot drop. I am really struggling with foot drop at the moment and have done for many years. It’s… --- ## [BEST Compression Socks for best Look For?](https://forum.mssociety.org.uk/t/best-compression-socks-for-best-look-for/81748)
**Author:** [@polpiop](https://forum.mssociety.org.uk/u/polpiop)\ **Replies:** 1\ **Last updated:** [14 September 2026 17:55 UTC](https://forum.mssociety.org.uk/t/best-compression-socks-for-best-look-for/81748 "2026-09-14T17:55:43Z")
I’ve been researching compression socks for MS because I’m considering getting a pair and want to find something that’s comfortable for regular use. I’m mainly looking for something comfortable, easy to wear, and suitabl… --- ## [ew to forum](https://forum.mssociety.org.uk/t/ew-to-forum/81708)
**Author:** [@tomshillington](https://forum.mssociety.org.uk/u/tomshillington)\ **Replies:** 12\ **Last updated:** [14 September 2026 09:48 UTC](https://forum.mssociety.org.uk/t/ew-to-forum/81708 "2026-09-14T09:48:05Z")
My girlfriend has just split up with me, I was really in love with her, and she was really honest with me. This is the first time someone has said I can’t carry on this relationship because I can’t deal with your illness… --- ## [Heat Sensitivity Webinar](https://forum.mssociety.org.uk/t/heat-sensitivity-webinar/81481)
**Author:** [@LeannLW](https://forum.mssociety.org.uk/u/LeannLW)\ **Replies:** 0\ **Last updated:** [15 July 2026 15:41 UTC](https://forum.mssociety.org.uk/t/heat-sensitivity-webinar/81481 "2026-07-15T15:41:47Z")
Join us tomorrow evening 16th of July at 6.30pm for our Heat Sensitivity Webinar. We have been experiencing some really hot days in the UK over the last month or so and we know that the hot weather can have an impact on… --- ## [Managing pain](https://forum.mssociety.org.uk/t/managing-pain/70690)
**Author:** [@CassieHannah](https://forum.mssociety.org.uk/u/CassieHannah)\ **Replies:** 7\ **Last updated:** [29 June 2026 21:01 UTC](https://forum.mssociety.org.uk/t/managing-pain/70690 "2026-06-29T21:01:10Z")
Hi everyone I’m fairly new to all this, I’ve only been diagnosed since June 2022 and this is my first time here. The support I’ve had from the MS team and my family has been beyond wonderful and I’m grateful to have so… --- ## [Changing medication delivery provider](https://forum.mssociety.org.uk/t/changing-medication-delivery-provider/80726)
**Author:** [@Punchy\_Dragon](https://forum.mssociety.org.uk/u/Punchy_Dragon)\ **Replies:** 8\ **Last updated:** [25 June 2026 05:37 UTC](https://forum.mssociety.org.uk/t/changing-medication-delivery-provider/80726 "2026-06-25T05:37:04Z")
So I’m literally at the end of my tether, LOL. I’m supposed to have a medication delivery sometime in the next two weeks but thanks to Lloyds Homecare’s amazing app (can you smell the sarcasm?) I can’t get logged in to … --- ## [Age Restriction and treatments](https://forum.mssociety.org.uk/t/age-restriction-and-treatments/81367)
**Author:** [@bretonsperet](https://forum.mssociety.org.uk/u/bretonsperet)\ **Replies:** 8\ **Last updated:** [24 June 2026 17:31 UTC](https://forum.mssociety.org.uk/t/age-restriction-and-treatments/81367 "2026-06-24T17:31:30Z")
I realised with shock last week that you have to be under a certain age to be treated with a cure for MS because 65 and over means our immune systems have weakened and the reset of our immune system won’t work. So it see… --- ## [Progressive Solitary Scleriosis](https://forum.mssociety.org.uk/t/progressive-solitary-scleriosis/74859)
**Author:** [@Daunieo](https://forum.mssociety.org.uk/u/Daunieo)\ **Replies:** 22\ **Last updated:** [12 June 2026 13:12 UTC](https://forum.mssociety.org.uk/t/progressive-solitary-scleriosis/74859 "2026-06-12T13:12:54Z")
Hello all, I know this thread doesn’t quite match my diagnosis and im in a rare sub set of the MS family tree. But honestly this is the closest I can get to any support. There’s no patient information leaflet for me or… --- ## [Had enough of it all.](https://forum.mssociety.org.uk/t/had-enough-of-it-all/81296)
**Author:** [@stevenmethven](https://forum.mssociety.org.uk/u/stevenmethven)\ **Replies:** 5\ **Last updated:** [9 June 2026 20:09 UTC](https://forum.mssociety.org.uk/t/had-enough-of-it-all/81296 "2026-06-09T20:09:25Z")
How does everyone else manage ? Recently I’ve had enough of it all, constant appointments and getting passed from pillar to post with no real outcome or change. Constantly feeling like I’ve lost my old self and confidenc… --- ## [Struggling but theres more.](https://forum.mssociety.org.uk/t/struggling-but-theres-more/81285)
**Author:** [@mazmiller111](https://forum.mssociety.org.uk/u/mazmiller111)\ **Replies:** 0\ **Last updated:** [3 June 2026 19:51 UTC](https://forum.mssociety.org.uk/t/struggling-but-theres-more/81285 "2026-06-03T19:51:56Z")
Still struggling, but I feel I am at peace with it THIS IS STILL ME. Only now my older sister has dementia. It is so unfair, her husband just died her daughter has taken charge of everything but very badly. As if things… --- ## [Having a baby when you have MS](https://forum.mssociety.org.uk/t/having-a-baby-when-you-have-ms/81215)
**Author:** [@safiyyawinter](https://forum.mssociety.org.uk/u/safiyyawinter)\ **Replies:** 4\ **Last updated:** [20 May 2026 13:06 UTC](https://forum.mssociety.org.uk/t/having-a-baby-when-you-have-ms/81215 "2026-05-20T13:06:00Z")
My husband has RRMS and we have just been blessed with our first child. However, despite being a loving and active father and great support to me, there are particularly things he cannot do due to balance issues and fati… --- ## [Ponvory and ENT infections](https://forum.mssociety.org.uk/t/ponvory-and-ent-infections/79085)
**Author:** [@sazg140](https://forum.mssociety.org.uk/u/sazg140)\ **Replies:** 2\ **Last updated:** [10 May 2026 08:57 UTC](https://forum.mssociety.org.uk/t/ponvory-and-ent-infections/79085 "2026-05-10T08:57:34Z")
My MS journey is long (15+ years) and convoluted (I was ‘forgotten’ by the medical profession for 10 years!), suffice to say I started Ponvory treatment just after Christmas. My MS does not, generally, affect my mobility… --- ## [Suprapubic Catheter & Clothing ](https://forum.mssociety.org.uk/t/suprapubic-catheter-clothing/81142)
**Author:** [@RachPPMS](https://forum.mssociety.org.uk/u/RachPPMS)\ **Replies:** 2\ **Last updated:** [28 April 2026 11:05 UTC](https://forum.mssociety.org.uk/t/suprapubic-catheter-clothing/81142 "2026-04-28T11:05:34Z")
Can anyone help with suggestions/recommendations of clothing to wear with a suprapubic catheter and leg bag. I’m really struggling to find comfortable clothing, especially being a full time wheelchair user due to PPMS ca… --- ## [BEST of MS Patient Journey: A Real-Life Perspective](https://forum.mssociety.org.uk/t/best-of-ms-patient-journey-a-real-life-perspective/81144)
**Author:** [@staroro84](https://forum.mssociety.org.uk/u/staroro84)\ **Replies:** 3\ **Last updated:** [25 April 2026 12:51 UTC](https://forum.mssociety.org.uk/t/best-of-ms-patient-journey-a-real-life-perspective/81144 "2026-04-25T12:51:47Z")
Living with Multiple Sclerosis (MS) is not just about managing a medical condition; it’s a lifelong journey filled with uncertainty, resilience, and adaptation. For many patients, the journey begins with subtle symptoms … --- ## [Best Relapsing-remitting MS treatment Need Honest Suggestions](https://forum.mssociety.org.uk/t/best-relapsing-remitting-ms-treatment-need-honest-suggestions/81003)
**Author:** [@rowan1](https://forum.mssociety.org.uk/u/rowan1)\ **Replies:** 2\ **Last updated:** [20 March 2026 13:26 UTC](https://forum.mssociety.org.uk/t/best-relapsing-remitting-ms-treatment-need-honest-suggestions/81003 "2026-03-20T13:26:59Z")
I’ve been living with relapsing-remitting MS for quite some time now. I’ve learned just how important it is to find something that truly suits your body and lifestyle. I also checked numerous user reviews to understand… --- ## [Sponsored Bike Ride for MS](https://forum.mssociety.org.uk/t/sponsored-bike-ride-for-ms/80999)
**Author:** [@pauljames.atm](https://forum.mssociety.org.uk/u/pauljames.atm)\ **Replies:** 0\ **Last updated:** [19 March 2026 16:33 UTC](https://forum.mssociety.org.uk/t/sponsored-bike-ride-for-ms/80999 "2026-03-19T16:33:22Z")
Hello everyone. As part of living with RRMS, I shall be taking on the huge challenge of riding my bicycle around the North Coast 500 in July to raise awareness and funds for MS charities. I will be part of a group, ridi… --- ## [trigeminal neuralga](https://forum.mssociety.org.uk/t/trigeminal-neuralga/80974)
**Author:** [@Ro1](https://forum.mssociety.org.uk/u/Ro1)\ **Replies:** 2\ **Last updated:** [17 March 2026 08:32 UTC](https://forum.mssociety.org.uk/t/trigeminal-neuralga/80974 "2026-03-17T08:32:18Z")
Hello everyone, I’ve not been on this forum for ages but this time I really feel I need someone to advise me about trigeminal neuralga. I’ve been diagnosed with this complaint about 8 years ago now and it comes and goes… --- ## [Pain Relief Advice](https://forum.mssociety.org.uk/t/pain-relief-advice/79694)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 4\ **Last updated:** [11 March 2026 18:33 UTC](https://forum.mssociety.org.uk/t/pain-relief-advice/79694 "2026-03-11T18:33:08Z")
Hi everyone, I was diagnosed with RRMS two weeks ago, and am suffering with a bit of pain in my back, lower legs and knees, just generally spend every day not feeling ‘comfortable’. Have also been diagnosed with Hypermo… --- ## [Oxybutynin tablets](https://forum.mssociety.org.uk/t/oxybutynin-tablets/80949)
**Author:** [@eeyoregirl](https://forum.mssociety.org.uk/u/eeyoregirl)\ **Replies:** 1\ **Last updated:** [6 March 2026 19:45 UTC](https://forum.mssociety.org.uk/t/oxybutynin-tablets/80949 "2026-03-06T19:45:53Z")
Hiya - has anyobe rlse --- ## [Neuro-Physio and MS Counsellor](https://forum.mssociety.org.uk/t/neuro-physio-and-ms-counsellor/80868)
**Author:** [@laurenm](https://forum.mssociety.org.uk/u/laurenm)\ **Replies:** 9\ **Last updated:** [1 March 2026 15:33 UTC](https://forum.mssociety.org.uk/t/neuro-physio-and-ms-counsellor/80868 "2026-03-01T15:33:47Z")
My MS Nurse has kindly made referrals for me to see a Neuro-Physiotherapist for an assessment, and hopefully get guidance on mobility and weakness issues I’m dealing with, and also a MS Counsellor for mood issues and to … --- ## [Urology Assessment](https://forum.mssociety.org.uk/t/urology-assessment/80891)
**Author:** [@airdrop-geckos.4d](https://forum.mssociety.org.uk/u/airdrop-geckos.4d)\ **Replies:** 11\ **Last updated:** [26 February 2026 12:46 UTC](https://forum.mssociety.org.uk/t/urology-assessment/80891 "2026-02-26T12:46:52Z")
Hello, I have a urology appointment tomorrow and not sure what to expect - I was referred as I’m finding I’m having to go to the loo more and more often and usually don’t fully empty so have to go straight back - an in… --- ## [Should I be worried? Post-Infusion new symptoms](https://forum.mssociety.org.uk/t/should-i-be-worried-post-infusion-new-symptoms/80374)
**Author:** [@airdrop-geckos.4d](https://forum.mssociety.org.uk/u/airdrop-geckos.4d)\ **Replies:** 8\ **Last updated:** [26 February 2026 12:05 UTC](https://forum.mssociety.org.uk/t/should-i-be-worried-post-infusion-new-symptoms/80374 "2026-02-26T12:05:56Z")
Hello, I had my third (or second - basically my first full dose!) of Ocrevus at the end of September. Although my usual symptoms have remained the same, only flaring when tired or stressed, I’ve developed some new muscle… --- ## [Eye tension, headache and nausea triggered by "screen scrolling"](https://forum.mssociety.org.uk/t/eye-tension-headache-and-nausea-triggered-by-screen-scrolling/80901)
**Author:** [@karimali](https://forum.mssociety.org.uk/u/karimali)\ **Replies:** 1\ **Last updated:** [25 February 2026 12:13 UTC](https://forum.mssociety.org.uk/t/eye-tension-headache-and-nausea-triggered-by-screen-scrolling/80901 "2026-02-25T12:13:16Z")
Hello. I have had MS symptoms come and go over the years. But over the past almost two years, one symptom has particularly persisted. It is extra-occular (eye muscle) tension that happens upon scrolling my smart phone or… [Next page](https://forum.mssociety.org.uk/tag/living-with-ms/3.md?match_all_tags=true&page=1&tags%5B%5D=living-with-ms)