# \#diagnosis **URL:** https://forum.mssociety.org.uk/tag/diagnosis/2.md [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) --- ## [Depression or just fatigued?](https://forum.mssociety.org.uk/t/depression-or-just-fatigued/38503)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 6\ **Last updated:** [13 October 2026 15:55 UTC](https://forum.mssociety.org.uk/t/depression-or-just-fatigued/38503 "2026-10-13T15:55:42Z")
--- ## [Migraines, waiting on mri, grieving old life](https://forum.mssociety.org.uk/t/migraines-waiting-on-mri-grieving-old-life/81841)
**Author:** [@lizzieblackledge](https://forum.mssociety.org.uk/u/lizzieblackledge)\ **Replies:** 7\ **Last updated:** [6 October 2026 10:33 UTC](https://forum.mssociety.org.uk/t/migraines-waiting-on-mri-grieving-old-life/81841 "2026-10-06T10:33:15Z")
Hello Im 25 and recently hit the brakes with my career due to debilitating migraine. Im scheduled for an MRI as my neurologist wants to check some abnormal symptoms for migraine. I have been trying to reassure myself it … --- ## [Still not diagnosed, bit about me](https://forum.mssociety.org.uk/t/still-not-diagnosed-bit-about-me/81750)
**Author:** [@nicfoyle13](https://forum.mssociety.org.uk/u/nicfoyle13)\ **Replies:** 13\ **Last updated:** [4 October 2026 16:33 UTC](https://forum.mssociety.org.uk/t/still-not-diagnosed-bit-about-me/81750 "2026-10-04T16:33:28Z")
Hi all, my name is Nicola. I started of with a tremor in my right hand now they are exploring ms, nmo amd mog. Ive 5 lesions including left eye optic neuritis which is high at 250. They were swaying towards more ms but … --- ## [Likelihood of MS after clear MRI before symptoms worsened ](https://forum.mssociety.org.uk/t/likelihood-of-ms-after-clear-mri-before-symptoms-worsened/81763)
**Author:** [@laurmch](https://forum.mssociety.org.uk/u/laurmch)\ **Replies:** 0\ **Last updated:** [14 September 2026 15:57 UTC](https://forum.mssociety.org.uk/t/likelihood-of-ms-after-clear-mri-before-symptoms-worsened/81763 "2026-09-14T15:57:03Z")
Wondering if it is worth pushing for further investigations… my partner has been suffering from a range of symptoms in the last few years. Started slow and have been worsening more rapidly this year. His uncle has MS whi… --- ## [Waiting around](https://forum.mssociety.org.uk/t/waiting-around/81673)
**Author:** [@Everythingisunknown](https://forum.mssociety.org.uk/u/Everythingisunknown)\ **Replies:** 4\ **Last updated:** [14 September 2026 11:12 UTC](https://forum.mssociety.org.uk/t/waiting-around/81673 "2026-09-14T11:12:43Z")
Hi everyone, I’d like to say a big hello, and that I hope you’re all doing as well as can be. I’d like to start off by saying that I don’t have a diagnosis, but my doctor suspects Ms and is referring me for a brain scan… --- ## [Newly diagnosed. Overwhelmed and lost](https://forum.mssociety.org.uk/t/newly-diagnosed-overwhelmed-and-lost/81624)
**Author:** [@mythh64](https://forum.mssociety.org.uk/u/mythh64)\ **Replies:** 5\ **Last updated:** [14 September 2026 09:23 UTC](https://forum.mssociety.org.uk/t/newly-diagnosed-overwhelmed-and-lost/81624 "2026-09-14T09:23:03Z")
I am 25 and was diagnosed with relapsing remitting MS just this afternoon. After eight months of intermittent vertigo, I had what I now understand to be an MS episode - extreme dizziness, disorientation, and weakness/num… --- ## [Best Walking Stick for Comfort and Stability –Any Recommendations?](https://forum.mssociety.org.uk/t/best-walking-stick-for-comfort-and-stability-any-recommendations/81688)
**Author:** [@gooddoyouwork](https://forum.mssociety.org.uk/u/gooddoyouwork)\ **Replies:** 5\ **Last updated:** [3 September 2026 17:44 UTC](https://forum.mssociety.org.uk/t/best-walking-stick-for-comfort-and-stability-any-recommendations/81688 "2026-09-03T17:44:52Z")
I’ve been looking for the best walking stick recently and there are so many options that it’s hard to know what actually makes a difference.For me, comfort and stability are the main things. I don’t really want somethin… --- ## [MRI: Private or NHS?](https://forum.mssociety.org.uk/t/mri-private-or-nhs/81135)
**Author:** [@bgrace26](https://forum.mssociety.org.uk/u/bgrace26)\ **Replies:** 9\ **Last updated:** [2 September 2026 19:32 UTC](https://forum.mssociety.org.uk/t/mri-private-or-nhs/81135 "2026-09-02T19:32:09Z")
Hello, looking for some advice please! I had my first appointment yesterday with a private neurologist who did some quick neurological tests on me (all normal except slightly reduced sensation in right side, but that was… --- ## [Spinal MRI without head cage?](https://forum.mssociety.org.uk/t/spinal-mri-without-head-cage/81313)
**Author:** [@samanthataylor16](https://forum.mssociety.org.uk/u/samanthataylor16)\ **Replies:** 13\ **Last updated:** [2 September 2026 19:31 UTC](https://forum.mssociety.org.uk/t/spinal-mri-without-head-cage/81313 "2026-09-02T19:31:14Z")
I’m awaiting an MS diagnosis. I’ve had a brain MRI and lumbar puncture. I’ve got a whole spine MRI on Sunday. I phoned the hospital today and asked if I have to have the dreaded cage (it’s recommended) but they can do it… --- ## [Sort of diagnosed](https://forum.mssociety.org.uk/t/sort-of-diagnosed/81534)
**Author:** [@elaineparker514](https://forum.mssociety.org.uk/u/elaineparker514)\ **Replies:** 1\ **Last updated:** [7 August 2026 10:12 UTC](https://forum.mssociety.org.uk/t/sort-of-diagnosed/81534 "2026-08-07T10:12:26Z")
Hi I have been experiencing symptoms on and of since my late 20s (I’m 61 now) but they always settled and were put down to other conditions by doctors. Last summer after experiencing severe vertigo and nausea and extrem… --- ## [symptoms but neurology disagree](https://forum.mssociety.org.uk/t/symptoms-but-neurology-disagree/81485)
**Author:** [@k8elizabeth](https://forum.mssociety.org.uk/u/k8elizabeth)\ **Replies:** 5\ **Last updated:** [24 July 2026 16:50 UTC](https://forum.mssociety.org.uk/t/symptoms-but-neurology-disagree/81485 "2026-07-24T16:50:38Z")
For context I am 24F, no family history but have had EBV and significant vitamin D deficiency as a teenager (risk factors for MS). Live in the UK so under the NHS (also working clinically in the NHS) I have had two sepa… --- ## [Head about to explode, and what a mess it has left me recently](https://forum.mssociety.org.uk/t/head-about-to-explode-and-what-a-mess-it-has-left-me-recently/80875)
**Author:** [@BE74](https://forum.mssociety.org.uk/u/BE74)\ **Replies:** 2\ **Last updated:** [5 July 2026 17:56 UTC](https://forum.mssociety.org.uk/t/head-about-to-explode-and-what-a-mess-it-has-left-me-recently/80875 "2026-07-05T17:56:33Z")
Hi, Is anyone here in the older diagnosis period of 2005-2013 able to set me straight what criteria was used from Poser criteria, McDonald Criteria, or NICE Clinical Guidance 8 Care Multiple Sclerosis Primary and Second… --- ## [Waiting for my diagnosis](https://forum.mssociety.org.uk/t/waiting-for-my-diagnosis/81299)
**Author:** [@wifie01](https://forum.mssociety.org.uk/u/wifie01)\ **Replies:** 25\ **Last updated:** [20 June 2026 18:49 UTC](https://forum.mssociety.org.uk/t/waiting-for-my-diagnosis/81299 "2026-06-20T18:49:34Z")
Hi, I’m waiting for final confirmation, I have had several falls and an obvious tremor ( not noticeable to my family), the ocular migraines are driving me nuts and so is the fatigue. I just want somewhere I can vent with… --- ## [SNM treatment ](https://forum.mssociety.org.uk/t/snm-treatment/81353)
**Author:** [@debbie154](https://forum.mssociety.org.uk/u/debbie154)\ **Replies:** 1\ **Last updated:** [20 June 2026 06:50 UTC](https://forum.mssociety.org.uk/t/snm-treatment/81353 "2026-06-20T06:50:34Z")
Hi I recently had a temporary sacral nerve modulator fitted. It works in that I can now go several hours before needing to pee but I still have extreme urgency and also still up 3 or 4 times a night. Anyone else experie… --- ## [Diagnosis Moment Survey](https://forum.mssociety.org.uk/t/diagnosis-moment-survey/81335)
**Author:** [@ClareMSS](https://forum.mssociety.org.uk/u/ClareMSS)\ **Replies:** 1\ **Last updated:** [17 June 2026 12:45 UTC](https://forum.mssociety.org.uk/t/diagnosis-moment-survey/81335 "2026-06-17T12:45:59Z")
Hi everyone - We’re looking for people with experience of being diagnosed with MS to answer this short, anonymous survey which explores the needs, challenges, and support gaps to help us design better, digital support. Y… --- ## [POTS and MS](https://forum.mssociety.org.uk/t/pots-and-ms/81320)
**Author:** [@c.r.mcdonnell](https://forum.mssociety.org.uk/u/c.r.mcdonnell)\ **Replies:** 2\ **Last updated:** [15 June 2026 12:35 UTC](https://forum.mssociety.org.uk/t/pots-and-ms/81320 "2026-06-15T12:35:20Z")
Hey there, to anyone reading this, what an elaborate journey I have been on since my car accident (this was definitely a trigger for my health condition/s) I’d like to just summarise where I have been and where I am now… --- ## [New diagnosis.](https://forum.mssociety.org.uk/t/new-diagnosis/81265)
**Author:** [@woodrainah](https://forum.mssociety.org.uk/u/woodrainah)\ **Replies:** 7\ **Last updated:** [2 June 2026 17:39 UTC](https://forum.mssociety.org.uk/t/new-diagnosis/81265 "2026-06-02T17:39:35Z")
Hello, I’m 17 years old and have recently in the last month been diagnosed with relapsing remitting MS after a flare up of my optic nerve becoming inflamed causing me to become blind in my right eye. I was admitted to ho… --- ## [Long wait](https://forum.mssociety.org.uk/t/long-wait/80978)
**Author:** [@leigh.walters](https://forum.mssociety.org.uk/u/leigh.walters)\ **Replies:** 4\ **Last updated:** [28 May 2026 17:56 UTC](https://forum.mssociety.org.uk/t/long-wait/80978 "2026-05-28T17:56:35Z")
Hi everyone, After MRIs and spinal fluid tests, confirmed MS but by my GP. I have a 3 month wait until I see MS specialist at nhs hospital (st George’s) - I assume this is to confirm diagnosis before starting any treatm… --- ## [Awaiting diagnosis, but I have a few questions..](https://forum.mssociety.org.uk/t/awaiting-diagnosis-but-i-have-a-few-questions/81052)
**Author:** [@millie123](https://forum.mssociety.org.uk/u/millie123)\ **Replies:** 10\ **Last updated:** [26 May 2026 17:53 UTC](https://forum.mssociety.org.uk/t/awaiting-diagnosis-but-i-have-a-few-questions/81052 "2026-05-26T17:53:36Z")
Hi everyone, I guess I’m kind of hoping for some connections with others in what has been a very anxious time. It seems I might be getting a diagnosis through a different way than others and I was wondering on what peop… --- ## [\*\*Symptoms for 8 years, could it be multiple sclerosis?](https://forum.mssociety.org.uk/t/symptoms-for-8-years-could-it-be-multiple-sclerosis/81237)
**Author:** [@nick\_feb](https://forum.mssociety.org.uk/u/nick_feb)\ **Replies:** 4\ **Last updated:** [24 May 2026 14:30 UTC](https://forum.mssociety.org.uk/t/symptoms-for-8-years-could-it-be-multiple-sclerosis/81237 "2026-05-24T14:30:50Z")
Hi everyone, my name is Nick and I am 28 years old. I am writing because for about 8 years now I have had various symptoms, but I have still not reached a conclusion, and I hope that some of you may be able to help me. I… --- ## [RIS or MS](https://forum.mssociety.org.uk/t/ris-or-ms/81163)
**Author:** [@maria86simpson](https://forum.mssociety.org.uk/u/maria86simpson)\ **Replies:** 4\ **Last updated:** [17 May 2026 16:35 UTC](https://forum.mssociety.org.uk/t/ris-or-ms/81163 "2026-05-17T16:35:23Z")
Hi all, after having an MRI last year the neurologist said I had 2 lesions that were age related. Was also diagnosed with a functional tremor. After having some issues with this neurologist I asked for a second opinion.… --- ## [Current diagnosis journey](https://forum.mssociety.org.uk/t/current-diagnosis-journey/79620)
**Author:** [@allywebbo](https://forum.mssociety.org.uk/u/allywebbo)\ **Replies:** 31\ **Last updated:** [17 May 2026 09:03 UTC](https://forum.mssociety.org.uk/t/current-diagnosis-journey/79620 "2026-05-17T09:03:28Z")
Hi all, I’ve been a longtime lurker but finally felt brave enough to make an account. I’ve been under the care of a private neurologist since mid April 2025 after developing sudden onset diplopia and problems speaking/s… --- ## [Finding the Right Doctor and Facing Family Reactions](https://forum.mssociety.org.uk/t/finding-the-right-doctor-and-facing-family-reactions/80470)
**Author:** [@Kelly1](https://forum.mssociety.org.uk/u/Kelly1)\ **Replies:** 3\ **Last updated:** [17 May 2026 09:02 UTC](https://forum.mssociety.org.uk/t/finding-the-right-doctor-and-facing-family-reactions/80470 "2026-05-17T09:02:30Z")
Hi everyone, I am new to this. :slight\_smile: I hope you are all well. I was diagnosed with RRMS last year. I’m South American living in Australia for the past 18 years. It’s been quite a journey — it took me three ne… --- ## [First private neurologist appointment - advice please!](https://forum.mssociety.org.uk/t/first-private-neurologist-appointment-advice-please/81112)
**Author:** [@bgrace26](https://forum.mssociety.org.uk/u/bgrace26)\ **Replies:** 2\ **Last updated:** [17 May 2026 09:02 UTC](https://forum.mssociety.org.uk/t/first-private-neurologist-appointment-advice-please/81112 "2026-05-17T09:02:08Z")
Hello everyone, I have my first private neurologist appointment on Monday and I was wondering if anyone has any advice on what expect during the appointment, what to ask and how best to explain my symptoms? I had an appo… --- ## [Awaiting MRI results wait](https://forum.mssociety.org.uk/t/awaiting-mri-results-wait/81037)
**Author:** [@rosiemay](https://forum.mssociety.org.uk/u/rosiemay)\ **Replies:** 2\ **Last updated:** [28 March 2026 12:27 UTC](https://forum.mssociety.org.uk/t/awaiting-mri-results-wait/81037 "2026-03-28T12:27:35Z")
Hello! I just wondered what was your normal wait time for your MRI results please? Perhaps we can normalise waiting times and reassure each other. I am currently panicking, I’m scared either way, my symptoms are debili… --- ## [Best Assistive Devices for MS Patients – What Really Helps in Daily Life?](https://forum.mssociety.org.uk/t/best-assistive-devices-for-ms-patients-what-really-helps-in-daily-life/81021)
**Author:** [@marrycharli105](https://forum.mssociety.org.uk/u/marrycharli105)\ **Replies:** 3\ **Last updated:** [24 March 2026 13:10 UTC](https://forum.mssociety.org.uk/t/best-assistive-devices-for-ms-patients-what-really-helps-in-daily-life/81021 "2026-03-24T13:10:39Z")
Hi everyone, I wanted to start a discussion around devices for people living with Multiple Sclerosis (MS). As we know, MS can affect mobility, balance, strength, and overall energy levels, so having the right support to… --- ## [trigeminal neuralga](https://forum.mssociety.org.uk/t/trigeminal-neuralga/80974)
**Author:** [@Ro1](https://forum.mssociety.org.uk/u/Ro1)\ **Replies:** 2\ **Last updated:** [17 March 2026 08:32 UTC](https://forum.mssociety.org.uk/t/trigeminal-neuralga/80974 "2026-03-17T08:32:18Z")
Hello everyone, I’ve not been on this forum for ages but this time I really feel I need someone to advise me about trigeminal neuralga. I’ve been diagnosed with this complaint about 8 years ago now and it comes and goes… --- ## [Given grey area guidance as don’t meet criteria](https://forum.mssociety.org.uk/t/given-grey-area-guidance-as-don-t-meet-criteria/80982)
**Author:** [@Kitsunewave](https://forum.mssociety.org.uk/u/Kitsunewave)\ **Replies:** 1\ **Last updated:** [16 March 2026 23:13 UTC](https://forum.mssociety.org.uk/t/given-grey-area-guidance-as-don-t-meet-criteria/80982 "2026-03-16T23:13:25Z")
Hi - first time posting here and am at a bit of a loss so hoping someone can relate to my experience and maybe share some advice. I’ve been dealing with on-and-off symptoms since 2024. Two major flare ups of upper limb/… --- ## [Best MS Diet Plan for Beginners – Need Honest Suggestions](https://forum.mssociety.org.uk/t/best-ms-diet-plan-for-beginners-need-honest-suggestions/80950)
**Author:** [@rowanhueo](https://forum.mssociety.org.uk/u/rowanhueo)\ **Replies:** 2\ **Last updated:** [7 March 2026 22:55 UTC](https://forum.mssociety.org.uk/t/best-ms-diet-plan-for-beginners-need-honest-suggestions/80950 "2026-03-07T22:55:08Z")
Hi everyone, I’ve been looking into the MS diet plan for beginners for a while now and wanted to ask the community for some honest suggestions. I’ve been a long-term follower of healthy diet approaches and recently star… --- ## [Highly suspecting MS](https://forum.mssociety.org.uk/t/highly-suspecting-ms/39113)
**Author:** [@JayteeUk](https://forum.mssociety.org.uk/u/JayteeUk)\ **Replies:** 20\ **Last updated:** [25 February 2026 18:45 UTC](https://forum.mssociety.org.uk/t/highly-suspecting-ms/39113 "2026-02-25T18:45:33Z")
Hello all i am currently undergoing investigations for my neurological symptoms. I am 39 and male. I am quite concerned about the range of the symptoms and speed on their onset. I thought maybe people here may have some… [Next page](https://forum.mssociety.org.uk/tag/diagnosis/2.md?match_all_tags=true&page=1&tags%5B%5D=diagnosis)