# \#care-and-services

**URL:** https://forum.mssociety.org.uk/tag/care-and-services/20.md

[Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md)

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## [Ayurvedic Treatment of MS](https://forum.mssociety.org.uk/t/ayurvedic-treatment-of-ms/75495)

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**Author:** [@Ray](https://forum.mssociety.org.uk/u/Ray)\
**Replies:** 3\
**Last updated:** [6 October 2026 09:13 UTC](https://forum.mssociety.org.uk/t/ayurvedic-treatment-of-ms/75495 "2026-10-06T09:13:49Z")

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Hey Guys, My Name is Ray n I suffer from MS n I know it since 2021. it’s a relapsing progressive MS. I went in Jan n Feb 2024 for 2 months to Ayush Prana in Kerala (India). There I underwent an Ayurvedic Treatment. So m…

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## [Help taking bins out from 1 up flat](https://forum.mssociety.org.uk/t/help-taking-bins-out-from-1-up-flat/81809)

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**Author:** [@pjoh](https://forum.mssociety.org.uk/u/pjoh)\
**Replies:** 3\
**Last updated:** [25 September 2026 12:09 UTC](https://forum.mssociety.org.uk/t/help-taking-bins-out-from-1-up-flat/81809 "2026-09-25T12:09:06Z")

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Hi, I live in Scotland, Glasgow. I live one up and have RRMS. I am independent and move around mostly ok (sometimes with a crutch) but I truly suffer badly when it comes to taking my bin out. I try to do it in smaller s…

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## [What is it like living 'up north' with MS?](https://forum.mssociety.org.uk/t/what-is-it-like-living-up-north-with-ms/81683)

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**Author:** [@RowanJ](https://forum.mssociety.org.uk/u/RowanJ)\
**Replies:** 7\
**Last updated:** [14 September 2026 10:56 UTC](https://forum.mssociety.org.uk/t/what-is-it-like-living-up-north-with-ms/81683 "2026-09-14T10:56:35Z")

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Hi, sorry if this is the wrong place to ask this. I’m the carer for my mum who has MS (on the edge between relapse/remitting and secondary progressive) and we’re beginning to consider moving up north due to the summer h…

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## [Bedroom design](https://forum.mssociety.org.uk/t/bedroom-design/74746)

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**Author:** [@BJ1](https://forum.mssociety.org.uk/u/BJ1)\
**Replies:** 10\
**Last updated:** [30 July 2026 18:33 UTC](https://forum.mssociety.org.uk/t/bedroom-design/74746 "2026-07-30T18:33:10Z")

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Hi I’ve had MS for 25 years. Recently started using a wheelchair and am having a ramp put in. Also moving to my own bedroom so my wife and I will not wake each other up. So I get to design and choose. If you could put …

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## [Care package](https://forum.mssociety.org.uk/t/care-package/74476)

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**Author:** [@lubelle](https://forum.mssociety.org.uk/u/lubelle)\
**Replies:** 2\
**Last updated:** [6 July 2026 14:46 UTC](https://forum.mssociety.org.uk/t/care-package/74476 "2026-07-06T14:46:01Z")

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Hi all. I’m new to the forums so please bare with me. I have a fair bit of exposure in a caring capacity to MS as I have both family and friends with different kinds, so I know it can vary. My query today is about start…

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## [Head about to explode, and what a mess it has left me recently](https://forum.mssociety.org.uk/t/head-about-to-explode-and-what-a-mess-it-has-left-me-recently/80875)

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**Author:** [@BE74](https://forum.mssociety.org.uk/u/BE74)\
**Replies:** 2\
**Last updated:** [5 July 2026 17:56 UTC](https://forum.mssociety.org.uk/t/head-about-to-explode-and-what-a-mess-it-has-left-me-recently/80875 "2026-07-05T17:56:33Z")

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Hi, Is anyone here in the older diagnosis period of 2005-2013 able to set me straight what criteria was used from Poser criteria, McDonald Criteria, or NICE Clinical Guidance 8 Care Multiple Sclerosis Primary and Second…

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## [Changing medication delivery provider](https://forum.mssociety.org.uk/t/changing-medication-delivery-provider/80726)

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**Author:** [@Punchy\_Dragon](https://forum.mssociety.org.uk/u/Punchy_Dragon)\
**Replies:** 8\
**Last updated:** [25 June 2026 05:37 UTC](https://forum.mssociety.org.uk/t/changing-medication-delivery-provider/80726 "2026-06-25T05:37:04Z")

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So I’m literally at the end of my tether, LOL. I’m supposed to have a medication delivery sometime in the next two weeks but thanks to Lloyds Homecare’s amazing app (can you smell the sarcasm?) I can’t get logged in to …

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## [Age Restriction and treatments](https://forum.mssociety.org.uk/t/age-restriction-and-treatments/81367)

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**Author:** [@bretonsperet](https://forum.mssociety.org.uk/u/bretonsperet)\
**Replies:** 8\
**Last updated:** [24 June 2026 17:31 UTC](https://forum.mssociety.org.uk/t/age-restriction-and-treatments/81367 "2026-06-24T17:31:30Z")

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I realised with shock last week that you have to be under a certain age to be treated with a cure for MS because 65 and over means our immune systems have weakened and the reset of our immune system won’t work. So it see…

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## [New here + care support at home](https://forum.mssociety.org.uk/t/new-here-care-support-at-home/81282)

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**Author:** [@jessicajefferyyy93](https://forum.mssociety.org.uk/u/jessicajefferyyy93)\
**Replies:** 1\
**Last updated:** [2 June 2026 19:58 UTC](https://forum.mssociety.org.uk/t/new-here-care-support-at-home/81282 "2026-06-02T19:58:33Z")

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Hello, Im new to this forum, I’m seeking some advice and support and thought id try this out. My parent has advanced primary progress MS. Are there any companies or organisations who offer buttons that alert a care pro…

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## [New to caring for father with MS - feel very alone](https://forum.mssociety.org.uk/t/new-to-caring-for-father-with-ms-feel-very-alone/81273)

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**Author:** [@Catlife](https://forum.mssociety.org.uk/u/Catlife)\
**Replies:** 2\
**Last updated:** [2 June 2026 17:40 UTC](https://forum.mssociety.org.uk/t/new-to-caring-for-father-with-ms-feel-very-alone/81273 "2026-06-02T17:40:06Z")

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Female, 35. I had a great relationship with my dad throughout my life but he was somewhat absent. He disappeared about 6 years ago until recently, when I was contacted to say he was very unwell. He had been in hospital f…

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## [Caring for parent with MS - fall ](https://forum.mssociety.org.uk/t/caring-for-parent-with-ms-fall/81281)

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**Author:** [@jessicajefferyyy93](https://forum.mssociety.org.uk/u/jessicajefferyyy93)\
**Replies:** 0\
**Last updated:** [2 June 2026 17:38 UTC](https://forum.mssociety.org.uk/t/caring-for-parent-with-ms-fall/81281 "2026-06-02T17:38:19Z")

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Hello, I’m new to this forum. Im seeking some advice and support and thought id give this a try. My Dad has PPMS, he’s had it for quite a few years. I’m seeking out some advice on at home callout alarms, and organisati…

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## [Tips for helping my dad remotely](https://forum.mssociety.org.uk/t/tips-for-helping-my-dad-remotely/81044)

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**Author:** [@cdlynch2001](https://forum.mssociety.org.uk/u/cdlynch2001)\
**Replies:** 4\
**Last updated:** [1 June 2026 17:49 UTC](https://forum.mssociety.org.uk/t/tips-for-helping-my-dad-remotely/81044 "2026-06-01T17:49:13Z")

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Hiya, first post here. I’ve had a couple of tricky situations and I wanted to know if anyone had any tips. My dad has had ms for over 30 years and his health has deteriorated in the last few years. In the last month he w…

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## [Exit and entry system](https://forum.mssociety.org.uk/t/exit-and-entry-system/81099)

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**Author:** [@lindseygraham360](https://forum.mssociety.org.uk/u/lindseygraham360)\
**Replies:** 0\
**Last updated:** [14 April 2026 17:26 UTC](https://forum.mssociety.org.uk/t/exit-and-entry-system/81099 "2026-04-14T17:26:05Z")

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Exit n entry system at airports

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## [Ongoing monitoring of PPMS](https://forum.mssociety.org.uk/t/ongoing-monitoring-of-ppms/81035)

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**Author:** [@havivelad](https://forum.mssociety.org.uk/u/havivelad)\
**Replies:** 1\
**Last updated:** [6 April 2026 14:08 UTC](https://forum.mssociety.org.uk/t/ongoing-monitoring-of-ppms/81035 "2026-04-06T14:08:13Z")

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My first post in this forum, hope it goes well. I’ve been diagnosed with PPMS while living abroad, and moved to England in 2023 on a skilled worker visa. I’ve started a treatment with the NHS, which is handled pretty we…

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## [Awaiting MRI results wait](https://forum.mssociety.org.uk/t/awaiting-mri-results-wait/81037)

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**Author:** [@rosiemay](https://forum.mssociety.org.uk/u/rosiemay)\
**Replies:** 2\
**Last updated:** [28 March 2026 12:27 UTC](https://forum.mssociety.org.uk/t/awaiting-mri-results-wait/81037 "2026-03-28T12:27:35Z")

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Hello! I just wondered what was your normal wait time for your MRI results please? Perhaps we can normalise waiting times and reassure each other. I am currently panicking, I’m scared either way, my symptoms are debili…

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## [Advice/support to help my mum](https://forum.mssociety.org.uk/t/advice-support-to-help-my-mum/80948)

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**Author:** [@junkyardgyp](https://forum.mssociety.org.uk/u/junkyardgyp)\
**Replies:** 3\
**Last updated:** [17 March 2026 17:51 UTC](https://forum.mssociety.org.uk/t/advice-support-to-help-my-mum/80948 "2026-03-17T17:51:41Z")

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Gosh I hope you guys can help. My mum 73 has lived with ms for 40 yrs now. Never had a fall. Unfortunately due to an acute kidney infection she has been in hospital. They have now dropped her twice. On fall today she has…

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## [Next steps and funding for residential care](https://forum.mssociety.org.uk/t/next-steps-and-funding-for-residential-care/80969)

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**Author:** [@tessasmith1987](https://forum.mssociety.org.uk/u/tessasmith1987)\
**Replies:** 1\
**Last updated:** [14 March 2026 16:43 UTC](https://forum.mssociety.org.uk/t/next-steps-and-funding-for-residential-care/80969 "2026-03-14T16:43:25Z")

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Hi everyone, I’m hoping for some guidance because we’re feeling quite lost about what to do next. My mother‑in‑law has MS, and her mobility and eyesight have deteriorated to the point where she can no longer safely live…

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## [best Dyspnea (Shortness of Breath) – Anyone Else Dealing With This?](https://forum.mssociety.org.uk/t/best-dyspnea-shortness-of-breath-anyone-else-dealing-with-this/80725)

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**Author:** [@ka3024288](https://forum.mssociety.org.uk/u/ka3024288)\
**Replies:** 0\
**Last updated:** [15 January 2026 10:09 UTC](https://forum.mssociety.org.uk/t/best-dyspnea-shortness-of-breath-anyone-else-dealing-with-this/80725 "2026-01-15T10:09:24Z")

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I’ve been reading about dyspnea, which is basically the medical term for shortness of breath, and I wanted to understand it better from real people’s experiences. what I’ve learned, dyspnea isn’t a disease on its own but…

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## [Benefits entitelment](https://forum.mssociety.org.uk/t/benefits-entitelment/79818)

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**Author:** [@usman2](https://forum.mssociety.org.uk/u/usman2)\
**Replies:** 2\
**Last updated:** [13 October 2025 21:00 UTC](https://forum.mssociety.org.uk/t/benefits-entitelment/79818 "2025-10-13T21:00:49Z")

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Hi, kinda new to the whole online thing, was diagnosed with ms recently have applied for PIP was wondering if anyone knew of any other benefits available, as I have worked all my life and now being unemployed with 3 kids…

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## [What's the best treatment infusions or self injections?](https://forum.mssociety.org.uk/t/whats-the-best-treatment-infusions-or-self-injections/80327)

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**Author:** [@louie712002](https://forum.mssociety.org.uk/u/louie712002)\
**Replies:** 4\
**Last updated:** [11 October 2025 19:19 UTC](https://forum.mssociety.org.uk/t/whats-the-best-treatment-infusions-or-self-injections/80327 "2025-10-11T19:19:42Z")

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What’s better self injections or hospital infusions? Please help i don’t know what to do.

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## [Neurologist appointment west London](https://forum.mssociety.org.uk/t/neurologist-appointment-west-london/79904)

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**Author:** [@Dollydaydream](https://forum.mssociety.org.uk/u/Dollydaydream)\
**Replies:** 6\
**Last updated:** [11 September 2025 18:18 UTC](https://forum.mssociety.org.uk/t/neurologist-appointment-west-london/79904 "2025-09-11T18:18:07Z")

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Hello, I’ve been struggling with all sorts lately but my gp has had to refer me back to a neurologist. Is there anyone who lives in west London out there that can tell me how long you waited to see a neurologist? I hea…

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## [Side effects from Plegridy](https://forum.mssociety.org.uk/t/side-effects-from-plegridy/77127)

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**Author:** [@reemtrivedi](https://forum.mssociety.org.uk/u/reemtrivedi)\
**Replies:** 10\
**Last updated:** [4 September 2025 11:26 UTC](https://forum.mssociety.org.uk/t/side-effects-from-plegridy/77127 "2025-09-04T11:26:20Z")

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Hello Everyone! Appreciate your advice. I have been taking Plegridy since July 19 and with my first injection it seemed fine. Then with my second one I think maybe I locked it so that’s why I didn’t see the green tick. …

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## [PPMS or SPMS ?? How do I know..,,,](https://forum.mssociety.org.uk/t/ppms-or-spms-how-do-i-know/80213)

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**Author:** [@anonymous150](https://forum.mssociety.org.uk/u/anonymous150)\
**Replies:** 3\
**Last updated:** [3 September 2025 16:48 UTC](https://forum.mssociety.org.uk/t/ppms-or-spms-how-do-i-know/80213 "2025-09-03T16:48:33Z")

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Good Morning I was diagnosed with MS on 13/8/2018 but not really had any symptoms, other than told I had brain scarring, other than overactive bladder - can anyone advise please ?

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## [Benefits of Magnesium Glycinate](https://forum.mssociety.org.uk/t/benefits-of-magnesium-glycinate/78202)

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**Author:** [@brownevelyn722](https://forum.mssociety.org.uk/u/brownevelyn722)\
**Replies:** 2\
**Last updated:** [25 August 2025 10:59 UTC](https://forum.mssociety.org.uk/t/benefits-of-magnesium-glycinate/78202 "2025-08-25T10:59:52Z")

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Hello everyone, I’ve recently started using magnesium glycinate to help with my sleep and stress, and I’m loving the natural benefits so far. However, I’m still experimenting to find the best brand or source for this su…

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## [Long distance wheelchair taxi services](https://forum.mssociety.org.uk/t/long-distance-wheelchair-taxi-services/69956)

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**Author:** [@cbell](https://forum.mssociety.org.uk/u/cbell)\
**Replies:** 3\
**Last updated:** [4 August 2025 12:06 UTC](https://forum.mssociety.org.uk/t/long-distance-wheelchair-taxi-services/69956 "2025-08-04T12:06:50Z")

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Hi all, I am getting married next May and it would mean the absolute world to me to have my grandad there but unfortunately, with his MS, he is now wheelchair bound. He lives about 2 hours away from where my wedding is …

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## [Hospitalisation](https://forum.mssociety.org.uk/t/hospitalisation/78755)

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**Author:** [@pinkpot](https://forum.mssociety.org.uk/u/pinkpot)\
**Replies:** 0\
**Last updated:** [3 March 2025 12:03 UTC](https://forum.mssociety.org.uk/t/hospitalisation/78755 "2025-03-03T12:03:13Z")

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Nothing due to MS but a secondary complication of COPD leading to a short period of hospitalisation - the one plays against the other - admitted to the Acute Medical Unit where, at this hospital, are MS nurses salaried b…

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## [Unknown Diagnosis](https://forum.mssociety.org.uk/t/unknown-diagnosis/78502)

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**Author:** [@Sammy88](https://forum.mssociety.org.uk/u/Sammy88)\
**Replies:** 3\
**Last updated:** [2 February 2025 22:23 UTC](https://forum.mssociety.org.uk/t/unknown-diagnosis/78502 "2025-02-02T22:23:46Z")

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Hi, So starting October 2023, I rang my GP after getting really bad headaches, noted I had previous tingling in hands and legs/feet. Also the left side of my face went numb on two different occasions. So they suspected …

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## [Dead legs](https://forum.mssociety.org.uk/t/dead-legs/76932)

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**Author:** [@sophiep](https://forum.mssociety.org.uk/u/sophiep)\
**Replies:** 4\
**Last updated:** [8 January 2025 18:42 UTC](https://forum.mssociety.org.uk/t/dead-legs/76932 "2025-01-08T18:42:59Z")

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Hello all. I am after some (not really sure what I’m after. Advice/support/just sharing probably understanding but my head is going crazy and need to share). My legs have been bad recently. I can still walk ok but they …

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## [This is a new one of my life is not a new one of to](https://forum.mssociety.org.uk/t/this-is-a-new-one-of-my-life-is-not-a-new-one-of-to/78143)

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**Author:** [@febedor556](https://forum.mssociety.org.uk/u/febedor556)\
**Replies:** 0\
**Last updated:** [22 December 2024 09:59 UTC](https://forum.mssociety.org.uk/t/this-is-a-new-one-of-my-life-is-not-a-new-one-of-to/78143 "2024-12-22T09:59:08Z")

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They don’t have any questions about to be a new one of my life is not

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## [Anyone registered with the Royal London Hospital?](https://forum.mssociety.org.uk/t/anyone-registered-with-the-royal-london-hospital/77936)

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**Author:** [@Mila](https://forum.mssociety.org.uk/u/Mila)\
**Replies:** 2\
**Last updated:** [27 November 2024 21:33 UTC](https://forum.mssociety.org.uk/t/anyone-registered-with-the-royal-london-hospital/77936 "2024-11-27T21:33:04Z")

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Hi all, I’m considering asking my GP to help me switch to the Royal London Hospital (for proximity) but I have no idea if the care there would be better or worse than Chelsea and Westminster hospital. Is anyone here regi…

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