Hiya, I was in your shoes around 16 years ago hun!
I was highly suspected of having PPMS and put on amitriptyline, baclofen, quinine, plus bp and cholesterol meds. My symptoms were typical ie loss of mobility, bladder and bowels misbehaving big time, fatigue, spasms and stiffness.
A year or 2 later, I was wrongly diagnosed with PPMS…a year later I was diagnosed with HSP…hereditary spastic paraplegia…but there was no actual proof of that either!!!
Then would you adam and eve it…HSP was turned back into PPMS.
Then just to drive me even further up the wall…my label now is HSP…with no proof.
I know, chuffin` bonkers innit?
So, as Tina says, being given certain meds means bugger all for as far as a definite diagnosis goes!.