I’m Niko, 23. My disease onset was 12/16 and I was diagnosed with RRMS in 01/18.
I’ve had a total of 7 relapses which have left me permanently with 3 quite mild symptoms. The right side of my body is slightly worse coordinated, I have double vision when looking extremely far to the right and my bladder sometimes needs 2 visits to the bathroom to empty completely.
Yesterday I started using MS medication called Tecfidera. I did not start the medication right away after the dx because I was in denial and feeling really bad about my situation. At first it seemed that my MS could be progressive in nature + I had a lesion in my spinal cord. Some of the doctors were pretty iffy about it but I was broken. Now things are looking up though. It has been confirmed that my MS is indeed RRMS and that I just happened to have a set of symptoms that really threw off the doctors. Im so relieved.
All in all I’m in a pretty good state of mind given my recent RRMS confirmation. Part of me feels like I’ve been saved, but I know RRMS can be just as disabling as PPMS. I’ve been really down for the past 2 years and I’m so ready to start living my life again. I’m just scared that if I let myself think that I’m fine now I might drop pretty hard if my MS turns out to be some what active/disabling/aggressive…
Do you have any tips for me moving forward? How should I set my mind up? I guess my MS is pretty mild because they accidentally even thought it to be the onset of slow PPMS rather than RRMS. Also I only have 2 lesions. I know this is stupid to ask but am I going to be ok? What can I expect? Sorry for the long post. I guess I’m just trying to get some perspective. Thanks!