You poor people

[ziggy_me]

I’m a new member, but as I’ve glanced through and read your situations it’s sad and also hard for us. Right now I’m feeling extreme fatigue. So I guess I decided to read about others with our condition.

I have relapse and remitting MS. It is scary especially when I get tired, my vision goes out of focus, I struggle to cross a road because traffic is blurred or I see things moving intermittently.

Every emotion us enhanced, I say I feel like a teenage girl, I cry at anything slightly emotional (I kind of enjoy it.) What I would advise is take half a year off work/life learn to embrace it, there’s a lot that comes with the condition. I tried to hide it best I could but it’s real, the fatigue is real, you may feel like yourself, but a confusing conversation can have you in a muddle. Good luck to you all.

[jthatcher]

Hi Ziggy - Welcome mate. I’m also quite new here. I’m not diagnosed yet but, your symptoms of fatigue and vision issues sound familiar. I have Tumefactive demyelination and a lesion on my Occipital/parietal lobe. So far I’m partially sighted and epileptic. You’re right - crossing the road can be a nightmare

They’re a nice bunch on here and, just looking in and reading seems a little comforting.

Try to look after yourself and, be careful out there x

All the best

Jon.