Some of you may remember our daughter Sarah Painton, and the worry we were going thru, with her Primary Progressive MS. Her illness has now got worse, with having a catheta fitted, a Baclofen Pump for her Spasms. she is in a wheelchair 24/7. Cannot walk, feed or wash herself. Today we have further problems, with now only saying one word at a time, not knowing who close family are. Now she has difficult in swallowing, so much so that the MS Nurse is talking of Sarah having tube fed into her tummy. Sarah is only 37 years of age. At this present time we as parents are increasingly worried of the future. We do our best to keep Sarah happy. so does her husband who is her Carer.
But we must be honest with you lovely people out there, we are very very concerned, so much so that we only think that we do not want sarah to go thru all this pain and hurt anymore.
Thankyou for listening to us, Chris and Brenda Brennan