Hi everyone. I normally post in the limbo bit as I’m not officially dx’d although it’s pretty certain I have PPMS (negative test results wont allow me a dx)
Anyway, the reason I am in here is to ask who still works and how do you cope??
I am a self employed photographer with my own studio, and although I’ve been ill for about 5 years, just lately I seem to be on a faster decline and I am struggling!
In my studio, I’m on the floor, then up a ladder, running around changing backgrounds etc and I am really struggling doing it. And getting out of breath!! (New to me! Not sure if MS related??)
How do you cope if you still work, and if your job does have a bit of a physical element to it… I am self employed so if I don’t work I don’t get paid!! Plus it’s not as if I can ask to be put on lighter duties!
I am struggling and am worried!!
Any advice??
Thank you