Why is everything so unpredictable?

Why is everything so unpredictable? They said that my double vision would go away! It did but now it’s back again. I struggle and wobble walking to the bus stop but today was on a whole other level! I had to stop several times to have a sit down and my husband had to come and find me and hold me up on the way back! These aren’t new symptoms but I thought they’d gone away. Today I relented and tried out the wheelchair so he can push me to places in the village. Like the doctors or the hairdressers. I don’t want to become a burden to him but I don’t want to become housebound either. I only walked to the bus stop today to prove that I could still do it and that I can be an independent grown up person! In fact I was sat crying on my walker by the side of the road when he came to find me. Not very independent or grown up!PS I was only diagnosed in May 22 and it’s only recently started to get me down.

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Hello! I think we’re suffering the same thing on tandem (I’m not yet diagnosed but very much expect to be, seeing the neurologist in a couple of weeks).

I’ve had the double vision for 4 weeks I think now - and every time I think “Wahey I’m cured” - 2 hours later I have 2 dogs instead of 1. :joy:

My youngest actually asked me yesterday if I was drunk because I can’t even walk across the living room without lurching.

Like you, I’m utterly done with it. I’m not geriatric and I’ve had these grand ideas of marching down the road to PROVE I’m fine … but yeh, given I can barely make it to the toilet without falling over, it’s not going to happen.

Solidarity and I hope we both come out the other side of this soon.

Gosh - I’ll need another nap after all that typing. :wink:

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