Where to go from here 🤔

Hi, so I firstly @ my last neuro appointment July 2023. My Neuro told me that in October 23 I would have an MRI this would be my new baseline MRI and also I would not have any further DMT treatment based on my age, I am now 65 so 64 @ the time. He did say should I relapse I would of course be offered steroids etc. and he would review me in a year, so I got my appointment for July this year it was cancelled about months ago then a month later re-booked but for a different time same day heho. Fast forward to last month when having follow up bloods with ms nurse she informed me that my Neuro is over subscribed and not to take it personally if im moved to another neurologist. Then last Sunday I get another email saying my appointment has been cancelled again :upside_down_face: im just confused and to top it off he never requested MRI :upside_down_face:

Hi, I have had the same. I am now 63 and told that as I am now in my 60s I probably wont have anymore relapses so they have stopped my DMD, like you I have also been told that my Neurologist has a lot more patients so will be 15 months to see him.
On my last 2 consultations with him and also MS Nurse so that is 2 years I was concerned about about the nerves in my leg also having issues with slight incontinence and was told it was probably nothing to do with my MS.
I just feel as though once I have reached my 60s+ I don’t matter anymore.

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Hello, I’m 43 and been on some sort of DMT, on and off, for about 15 years now.

My latest DMD I’ve recently chosen to pause, because of recurring infections.

The more I think about it, I personally believe for the dozen or so relapses where I needed to take steroid, it would have happened anyway irrespective of being on any DMT imho.

It would be nice if the new government could bring back homeopathy on the NHS, I’d prefer to explore that option instead tbh, it worked so well for me 20+ years ago tbf. :smirk:
JP

Hi,
Thank you for responding I guess it’s a waiting game, I have an appointment with my MS nurse in August so I will see what she says.
I have had results back from my recent MRI that my Dr requested nothing untoward so good news there, and my optometrist has recommended prism for my glasses to help with double vision…
I am now taking toprimate for migraines/ headaches which seems to be helping.
But if im not having relapses does that mean im just progressing???