Where do I go now?

Everyday living
1

I have had RRMS for nearly 8 years, it’ll be 8 years this July since I was diagnosed. I was 27 when I was diagnosed and now I’m 35

I lost my job and had to move house when I got diagnosed. I haven’t worked since mid 2014

I had Lemtrada and it worked really well. I don’t have to walk with a stick anymore. This is not everything, but it’s a big part of it. I still struggle with spelling/writing, eating, going to the toilet, handling my emotions

But I am stable, as the hospital always tell me. Stable

I can’t see a way back to work, I need to work, the ‘new’ flat I live in is double the price of my old one in terms of rent and council tax

I got dismissed from my job for medical inefficiency in nov 14 and I haven’t worked since

I’m wary of going back to work. No one can tell me how long the Lemtrada will be efficient for. What if I get back to work and I end up relapsing and back in the gutter

But equally, I’m only 35, this is not me done with work

I’ve recently tried to get into volunteering, to ready me for actual work. I had an interview over zoom (which I hated) for a telephone befriending role. I didn’t get it

I don’t feel confident when it comes to work. I need career advice. My old job is so far removed from what I want to do going forward. How do you look for a job when you don’t know what you want to do?

2

It sounds a little bit like you have lost your confidence and with good reason.

It might help, only suggestions mind, to identify for yourself first what you think you could manage both in terms of work and hours.

Then approach the Citizens Advice Bureau and explain what your financial needs are but these are your expectations and health limitations… then ask them for some advice.

The Citizens Advice Bureau are meant to be neutral and could offer suggestions on top of what we can offer.

Finally, be kind to yourself :blush:

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