hello, I’ve previously had some excellent advice from Karen and Jaqui etc and hope i can maybe have some more advice.
Last year (October 2011) I had ON in my good eye, saw MS specialist really quickly and then had 5 days of IV steroids. It did the trick and by and large my vision ok ish. I had a MRI scan with and without contrast 6 weeks after the steroids - it was clear. i had loads of blood tests - all clear and nothing unusual in my neuro exam. I was diagnosed with CIS and will see the neuro next march. I have the number of the MS nurse but, to be honest, my only meeting with her was awful. She was completly useless and told my husband to stop asking questions because she was scared! Maybe the others are better.
By and large I’ve been ok. I’m back at work fulltime (teacher) but since June things have not been so good. First my left arm went dead, really heavy like it didnt belong to me. I had terrible pain in my left hand. i saw a GP, he told me to ring the MS nurse, I did and she returned my call 3 weeks later. I was out and she left a message. So that was that.
6 weeks ago first my left arm went dead, then my right arm. My arms feel drunk. I’e developed a tremor in both hands - I notice it when I do something like typing. By the end of the day my arms feel like they arent mine. So, I went to a different GP, explained the whole thing again. She did a neuro exam and said I had brisk reflexes on my left side - what does his mean. She arranged a xray on my neck - thats clear. I’m back at the GP’s on friday and I really don’t know what to think. Although the neuro was good - I got treatment, I found him really difficult to talk to.
Is it possible the 5 days of steroids infleunced the scan? Is there any point to another scan?
Just wish I knew what it is (like everyone else I guess)