Hey guys, so I have relapsing remitting MS and my main symptom is a severe hand tremor. I’ve sort of become obsessed with reading things even like this website and forum, I tell myself it’s so if (and when) I get new symptoms i would know its MS because of what I’ve read.
But in truth, all its doing is making me really sad and worried. I say this as a 27 year old male, and I’d really like not to push my amazing wife away but I’m finding I’m not the greatest at hiding how I feel.
So, I come back to you all. Any advice you have would be greatly appreciated, thanks.
Hi it’s easy to become obcessed with MS but you need to find something which you enjoy doing which will take your mind off MS, I started doing painting which I always wanted to do but I never had time before it takes my mind off MS, perhaps you and your wife could do something together, I had always did a lot of cycling but the last few years my balance is really bad and I can’t ride a bike so I brought a off-road electric Trikecycle last year and now I am mobile again and I can now go cycling with Husband enjoy life
Hey many thanks for your post. I promise I’ve tried lots of things but with me the hand shaking thing is a constant reminder. Plus, I recently read an article on this website which says: 'Somewhere between 4 and 7 in every 10 people with MS will experience some kind of changes in memory or thinking. ’ So I guess I’ll try stop reading
Putting that stat another way, as many as 6 out of 10 will experience no change in memory or thinking. But even if you do, it’s unlikely to be anything serious. I can have memory problems. Does it make my life any worse? No, it just means when I’m doing a pub quiz and there’s a question about a celeb, I can picture them but can’t remember their name. Or I forget to get something from tesco. You learn to cope and add reminders to your phone.
With trying different activities, does the hand shaking thing stop you from enjoying it? When you’re doing other things, choose to put your focus on what other bits of your body are feeling, and what you can see, hear and smell. Noticing all those other things can help the hand shaking seem much smaller.
And what things bring you joy, peace, contentment, a feeling of accomplishment, energy, life? Choose those things daily, it will help your general mood. And choose to do things that bring your wife joy and help her feel loved.
Hey, many thanks for this reply Dan, it’s a much better way of seeing things.
Hand shaking is a constant reminder that I’m different but, apart from the odd instance whereby I’ve burnt my hand by dropping hot tea on it, I think I’m getting used to it.
laughing helps