Well after the confusion last week about my spine MRI my consultant called me last night.
She is very difficult to understand and talks very very quick.
But she said my spine mri does not show demyelination.
It does show damage but age related.
She also said my case was at the regional meeting on the 25 oct.
They spoke about my brain ans spine mri. Not sure how they spoke about the spine one, I only had the mri on the same afternoon.?
But from the twp lesions in brain they can prove space but not time.
So it is more important that i have the lumber done.
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PBMS
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Hi Teddy, well this is looking positive for a diagnosis. How long have you been having MS type symptoms for?
My lesions took 22 years to show themselves. I dont have any brain lesions.
Nothing showed abnormal on my LPs.
Maybe you will be offered DMDs to slow attacks/progression/disability.
Best wishes, Boudsxx
hi Bouds
My only symptom started in April this year.
I had slight numbness around my eye and mouth. Could feel it but it just seemed a bit weird.
Now its a little cold around my eye.
2 brain lesions ( other consultant said 5!) one on my trigeminal nerve the other not sure.
One on TN was showing active.
Consultant sure its MS but on only prove Space not time.
If Lumber show bands I think they can say its MS?
Of course, hoping my lumber is normal.
My case has been to the local board and regional board and the agreement is cannot prove time.