Hi, I am 47 & been seeing Neurologists for 2yrs in Sept, 2012 after I woke with numbness down left side sent to A&E suspected TIA but not & after ct scan & mri referred to Neuro as outpatient.
Neuro sent for evoked potential tests xrays & more bloods
Evoked tests showed left leg getting little signals & right almost none. Bloods showed P-anca levels abnormal & raised concern of Vasculitis but Rheumatology claims no.
Eyesight perfect (well no change after diabetic cataract removal age 21)
MRI’s showed 3 lesions on brain, have had type 1 diabetes since age 14 & hypothyroidism.
Diagnosed with SMA aged 21 in hands predominantly, have Vitiligo which developed about 15 yrs ago, all auto-immune except SMA.
2nd MRI shows lesions are the same & no new ones.
So received ltr from Consultant saying Diagnoses: (copy word for word)
CNS Inflammatory disease with radiological & CSF markers of demyelination.
Strongly & persistently positive myeloperoxidase antibodies with some subtle systemic symptoms
So he has talked of ms but stated their reluctance to diagnose as we all know BUT I just want diagnosis so I can move on & deal with the balance issues & vertigo similar issues - Severe headaches every other day minimum, cannot walk for more than 20mins before need a quick break.
So he has started me on Azathioprine immunosuppressant to see if it helps…weekly blood tests to keep eye on liver/kidney function which are currently ok.
Any comments/views welcomed as currently cannot tell travel insurance anything really.
thanks for reading & sorry for long post.