# Tysabri & SPMS **URL:** \ **Category:** Everyday living\ **Created:** [1 May 2012 10:57 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690 "2012-05-01T10:57:24Z")\ **Posts on this page:** 6\ **Page:** 2
**Author:** ![patrick.b](https://avatars.discourse-cdn.com/v4/letter/p/e99b99/32.png) [@patrick.b](https://forum.mssociety.org.uk/u/patrick.b)\ **Post date:** [2 May 2012 22:59 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/21 "2012-05-02T22:59:35Z")
Hello everyone, The Tysabri trial. I rolled up atBarts hospital at the appointed time and it turns out that my consultant, Prof G, wants me to go on the trial for Fampridine. Its a drug that makes walking easier. Tysabri trial also in London, Fampridine one at Barts and Tysabri one in Euston Road and Barts as well as numerous other hospitals. All a bit confusing. Its all a long story, I will chase up the Tysabri one tomorrow, Watch this space, all will be revealed either here or on my website Many thanksa for all the messages. Patrick ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [3 May 2012 09:26 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/22 "2012-05-03T09:26:56Z")
> [@patrick.b](#): > > Hello everyone, > > The Tysabri trial. > > I rolled up atBarts hospital at the appointed time and it turns out that my consultant, Prof G, wants me to go on the trial for Fampridine. Its a drug that makes walking easier. Tysabri trial also in London, Fampridine one at Barts and Tysabri one in Euston Road and Barts as well as numerous other hospitals. All a bit confusing. > > Its all a long story, I will chase up the Tysabri one tomorrow, > > Watch this space, all will be revealed either here or on my website > > Many thanksa for all the messages. > > Patrick Hiya Patrick, My understanding is that Fampridine is at the stage where it is being reviewed by NICE as there have been some good results in trials. I don’t think there is much chance of going on both trials as i must admit the criteria to go on the Tysabri trial was really strict. I had to go back to the QE three times to answer questions and be assessed. I think in all there are 850 people around the world going on the trial at 115 differant hospitals Good luck John ---
**Author:** ![Markolad](https://avatars.discourse-cdn.com/v4/letter/m/f4b2a3/32.png) [@Markolad](https://forum.mssociety.org.uk/u/Markolad)\ **Post date:** [3 May 2012 11:38 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/23 "2012-05-03T11:38:43Z")
All the best John I really hope you get on the good stuff, I’m on it over 3 years now and its worked wonders for me I have agressive RRMS but I’ve a few good friends that are SPMS and I wish so much that they could have a chance to try Tysabri fingers crossed it shows some really good results in SPMS ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [3 May 2012 12:34 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/24 "2012-05-03T12:34:14Z")
> [@Markolad](#): > > All the best John I really hope you get on the good stuff, I’m on it over 3 years now and its worked wonders for me I have agressive RRMS but I’ve a few good friends that are SPMS and I wish so much that they could have a chance to try Tysabri fingers crossed it shows some really good results in SPMS Cheers Mark, first infusion on May 15th and i really hope i get the good stuff as they ain’t much else going at the moment. At least if i don’t i will be closely monitored for the next 2 years with blood tests, walking tests, MRI scans etc etc so at least my neuro won’t be getting rid of me. They must have a good idea that it helps people with SPMS or i doubt they would be investing so much money in the trial. ---
**Author:** ![Markolad](https://avatars.discourse-cdn.com/v4/letter/m/f4b2a3/32.png) [@Markolad](https://forum.mssociety.org.uk/u/Markolad)\ **Post date:** [3 May 2012 16:29 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/25 "2012-05-03T16:29:35Z")
John I have a friend in NewYork she’s SPMS and she’s in her 2nd year on Tysabri it’s different over there but MRIs show her MS is now stable I really hope the trial goes well here in the UK and they make Tysabri available to people with SPMS. Mark. ---
**Author:** ![greenhouse](https://avatars.discourse-cdn.com/v4/letter/g/7c8e57/32.png) [@greenhouse](https://forum.mssociety.org.uk/u/greenhouse)\ **Post date:** [4 May 2012 14:46 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/26 "2012-05-04T14:46:17Z")
Oh good luck, I really hope you get the stuff too, Jean x [Previous page](https://forum.mssociety.org.uk/t/tysabri-spms/23690.md?page=1)