# Tysabri & SPMS

**URL:** <https://forum.mssociety.org.uk/t/tysabri-spms/23690>\
**Category:** Everyday living\
**Created:** [1 May 2012 10:57 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690 "2012-05-01T10:57:24Z")\
**Posts on this page:** 20\
**Page:** 1

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**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 10:57 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/1 "2012-05-01T10:57:24Z")

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Just got the phone call from the QE in Birmingham that i have been accepted by Biogen to start the trial of Tysabri in SPMS.

Its a double blind trial so heres hoping i get the good stuff

John

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 11:01 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/2 "2012-05-01T11:01:14Z")

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congrats…il have my fingers crossed for you to get the good stuff too!

I go to QE too, first time yesterday… its amazing was so impressed by the building!!

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 11:33 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/3 "2012-05-01T11:33:48Z")

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Fingers crossed for you.

Pip

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 11:39 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/4 "2012-05-01T11:39:48Z")

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> [@pip](#):
>
> Fingers crossed for you.
> 
> Pip

Thank you

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**Author:** ![patrick.b](https://avatars.discourse-cdn.com/v4/letter/p/e99b99/32.png) [@patrick.b](https://forum.mssociety.org.uk/u/patrick.b)\
**Post date:** [1 May 2012 12:04 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/5 "2012-05-01T12:04:03Z")

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Hi

Tomorrow I’m going to Barts for tests to see if I can be accepted for Trial of Natalizumab in SPMS. Not too sure iff its the same thing.as Tysabri

Good luck to John. Finally they are finding things that slow down or stop SPMS and able to trial them.

Fingers crossed for everyone,

Patrick

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 12:07 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/6 "2012-05-01T12:07:39Z")

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> [@patrick.b](#):
>
> Hi
> 
> Tomorrow I’m going to Barts for tests to see if I can be accepted for Trial of Natalizumab in SPMS. Not too sure iff its the same thing.as Tysabri
> 
> Good luck to John. Finally they are finding things that slow down or stop SPMS and able to trial them.
> 
> Fingers crossed for everyone,
> 
> Patrick

Yes it the same trial

Good luck hope you get on the trial

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 12:08 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/7 "2012-05-01T12:08:24Z")

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> [@patrick.b](#):
>
> Hi
> 
> Tomorrow I’m going to Barts for tests to see if I can be accepted for Trial of Natalizumab in SPMS. Not too sure iff its the same thing.as Tysabri
> 
> Good luck to John. Finally they are finding things that slow down or stop SPMS and able to trial them.
> 
> Fingers crossed for everyone,
> 
> Patrick

Yes it the same trial

Good luck hope you get on the trial

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<div class="post-metadata">

**Author:** ![mrsJ](https://avatars.discourse-cdn.com/v4/letter/m/5e9695/32.png) [@mrsJ](https://forum.mssociety.org.uk/u/mrsJ)\
**Post date:** [1 May 2012 13:06 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/8 "2012-05-01T13:06:45Z")

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good luck, hope you get the real stuff,and it works wonders for you,let us know how you get on.

jaki xx

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 13:10 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/9 "2012-05-01T13:10:10Z")

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> [@jaki](#):
>
> good luck, hope you get the real stuff,and it works wonders for you,let us know how you get on.
> 
> jaki xx

Cheers Jaki,

Don’t worry i will keep everyone informed

John x

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**Author:** ![AnnieB](https://avatars.discourse-cdn.com/v4/letter/a/5e9695/32.png) [@AnnieB](https://forum.mssociety.org.uk/u/AnnieB)\
**Post date:** [1 May 2012 14:56 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/10 "2012-05-01T14:56:14Z")

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**That is really good news, hope you get the real stuff and it does the business for you.**

**Thanks for blazing a trail for the rest of us SPMSers**

**Do let us know how you get on.**

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 15:50 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/11 "2012-05-01T15:50:52Z")

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GOOD LUCK TO YOU BOTH!!! Brilliant news

Karen x

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [1 May 2012 16:37 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/12 "2012-05-01T16:37:39Z")

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Well done both of you for getting on the trial. I hope you’re on the good stuff and that it works well for you.

Carol

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**Author:** ![patrick.b](https://avatars.discourse-cdn.com/v4/letter/p/e99b99/32.png) [@patrick.b](https://forum.mssociety.org.uk/u/patrick.b)\
**Post date:** [1 May 2012 19:13 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/13 "2012-05-01T19:13:40Z")

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Hello to everyone.

I will keep you updated through my website and also announce it on Facebook and Twitter’

The website is [www.aif4disabled.com](http://www.aif4disabled.com), Facebook is [http://www.facebook.com/aid4disabled](http://www.facebook.com/aid4disabled) Twitter is :[https://twitter.com/aid4disabled](https://twitter.com/aid4disabled).

I too hope it works, people are talking about it in a very positive way.

Fingers, legs and toes are crossed!

Regards,

Patrick

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<div class="post-metadata">

**Author:** ![mrsJ](https://avatars.discourse-cdn.com/v4/letter/m/5e9695/32.png) [@mrsJ](https://forum.mssociety.org.uk/u/mrsJ)\
**Post date:** [2 May 2012 08:59 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/14 "2012-05-02T08:59:45Z")

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good luck with the trial Patrick,hope it goes your way.

jaki xx

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<div class="post-metadata">

**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [2 May 2012 09:25 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/15 "2012-05-02T09:25:40Z")

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I have everything crossed for you both. Good luck. Patrick I will follow your progress on Facebook.

DL xXx

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<div class="post-metadata">

**Author:** ![AnnieB](https://avatars.discourse-cdn.com/v4/letter/a/5e9695/32.png) [@AnnieB](https://forum.mssociety.org.uk/u/AnnieB)\
**Post date:** [2 May 2012 10:41 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/16 "2012-05-02T10:41:01Z")

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> [@patrick.b](#):
>
> Hello to everyone.
> 
> I will keep you updated through my website and also announce it on Facebook and Twitter’
> 
> The website is [www.aif4disabled.com](http://www.aif4disabled.com), Facebook is [http://www.facebook.com/aid4disabled](http://www.facebook.com/aid4disabled) Twitter is :[https://twitter.com/aid4disabled](https://twitter.com/aid4disabled).
> 
> I too hope it works, people are talking about it in a very positive way.
> 
> Fingers, legs and toes are crossed!
> 
> Regards,
> 
> Patrick

**Good Luck,**  **Patrick**

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<div class="post-metadata">

**Author:** ![bonnie1](https://avatars.discourse-cdn.com/v4/letter/b/7c8e57/32.png) [@bonnie1](https://forum.mssociety.org.uk/u/bonnie1)\
**Post date:** [2 May 2012 17:46 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/17 "2012-05-02T17:46:21Z")

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Good news, will be following your progress.

My husband has SP, but is too old for the trial as the upper limit is 58.

Still who knows for the future?

Keeping everything crossed for you.

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<div class="post-metadata">

**Author:** ![Cat66](https://avatars.discourse-cdn.com/v4/letter/c/f04885/32.png) [@Cat66](https://forum.mssociety.org.uk/u/Cat66)\
**Post date:** [2 May 2012 18:02 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/18 "2012-05-02T18:02:37Z")

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Good luck both of you

Cathy

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<div class="post-metadata">

**Author:** ![Corkie](https://avatars.discourse-cdn.com/v4/letter/c/e56c9b/32.png) [@Corkie](https://forum.mssociety.org.uk/u/Corkie)\
**Post date:** [2 May 2012 18:18 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/19 "2012-05-02T18:18:33Z")

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Good luck John; hope it works for you.

Wendyx

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<div class="post-metadata">

**Author:** ![Corkie](https://avatars.discourse-cdn.com/v4/letter/c/e56c9b/32.png) [@Corkie](https://forum.mssociety.org.uk/u/Corkie)\
**Post date:** [2 May 2012 18:21 UTC](https://forum.mssociety.org.uk/t/tysabri-spms/23690/20 "2012-05-02T18:21:06Z")

</div>

> [@patrick.b](#):
>
> Hi
> 
> Tomorrow I’m going to Barts for tests to see if I can be accepted for Trial of Natalizumab in SPMS. Not too sure iff its the same thing.as Tysabri
> 
> Good luck to John. Finally they are finding things that slow down or stop SPMS and able to trial them.
> 
> Fingers crossed for everyone,
> 
> Patrick

Good luck to you too Patrick

Wendyx

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