Firstly hi everyone. I’m trying to find answers to longstanding symptoms which are not only getting me down now but also are emotionally and physically draining.
I get the impression the docs feel I’m simply a hypochondriac or simply a time waster. I’m certainly not imagining anything, certainly not the pain etc.
Hopefully someone can either offer advice or point me in the right direction. I’ve arrived here today after putting all my on going symptoms into Google. I have no idea if this is Ms or something similar.
Where did it all start?
Looking back now about to 26 years ago I had meningitis like symptoms and had a lumber punch.
But fast forward to about 8 years ago on holiday where I felt dizzy and had stomach pains. Returned, thought it was appendicitis as doubled up. Told a stomach bug.
Pains continued an told it was likely ibs. No further tests done.
2 years later an idea start getting pain between shoulders and up the neck, and lots of headaches. Advised it was in my back & the neck and advised to see a osteopath. Didn’t really do much. I do always get “knots” the on my neck when symptoms flare up. Usually at the base of the scull or near shoulders.
Then started getting stabbing chest pains. Ecg done and cardiologist said very minor abnormal rhythm, something pretty much all of us have and interestingly mentions fatigue syndrome.
Headaches and chest pains continue, along with neck pain and pain behind the right eye. Signed off with stress for 4 months.
One day had numbness down whole right side. Cue a day in a&e with yet more bloods and urine tests normal, and now a head CT scan. Told normal.
Currently referred to a urologist for pain in bladder, genitals during ejaculation and intense pain in the pelvic bone on the right.
And so on an so on. Everything comes and goes, sometimes mild, this week quite bad. I was weak on right side and excruciating pain behind, in and around the eye with dizziness so bad I feel I could pass out but don’t.
Am I mad, imagining it all or simply need to scream and shout at the doctors?
Thanks for reading my essay, and for any help you can offer me put this into some sort of box so I can deal with this and get my life back.