hi everyone hope all ok.

diagnosed with ppms 2yr now,recently started to have tingling in feet and they go cold

feels like buid up of pressure and then uncontrollable shaking of leg,had now and again while ago

but more frequent lately on 20mg amitryptiline and baclofen,my nurse had phone stolen so out of touch and waiting for reply to email

just wondered if anyone had experience


Hi Steve, I also get uncontrollable foot/leg jerks. Usually when doing transfers…makes me really nervous of falling.

I am on 75mg ami and 30mg baclofen.

Dunno what meds would help it. Hopefully someone else will tell us, eh?

luv Pollx