I’ve recently been diagnosed with MS. Well last December, and was made more official in February with my LP results.
Well I’m due to see my Neurologist on March 15th and have my first meeting with an MS Nurse on 1st April.
However he says he wants to start me on a DMD asap, he recommends Tecfidera. I’m an inquisitive person, much like with my diagnoses I have looked at all information available (here, MS trust and NHS, I don’t google things) and as informative as they are I’d like a real person touch. To hear what experiences people have had actually taking the drug, how you take it, the side effects and how you are on it etc…
I’m open to any information just so I have as much information when I see the neurologist on the 15th. So thank you to anyone if they do.
Also randomly, when I had my MRI the gentleman took me out of the machine and told me to stay as still as possible before putting me back in, I was as still as possible and did not move. My assumption was that it was just to tighten the head brace, however today I had to see the dentist who wanted to do routine Xrays, who also told me to stay as still as possible. However this time my father was with me, and he said I was shaking slightly and although I have tremors in my hands sometimes I’ve never noticed my head moving and I just wondered if that was normal? (I will mention this to my consultant when i see him)