I had some blood tests recently that suggested I had a very overactive thyroid. I posted on here and Moyna asked if I was taking high dose Biotin, as this can mess up thyroid test results. This was what had happened in my case. I wanted to post and thank Moyna for this vital information and also put this up so people will find it in a search for ‘thyroid’. My GP was all set to give me drugs for an overactive thyroid after seeing the test results, and that would have been a disaster, I think.
Just to reassure people, Biotin doesn’t affect your thyroid at all. Biotin is used in the tests and having high levels in your blood changes the test results but they go back to normal if you have a couple of days without taking Biotin.
Here are a couple of links explaining about thyroid tests and Biotin, in case anyone is interested:
That is so useful. Thankfully Moyna pointed you in the right direction. I think we should all be slightly more cautious about supplements. Not to suggest we shouldn’t take them, but merely that we should make sure our GP/neuro/other doctors know what we are taking. Sometimes it’s a drug combination that can cause trouble rather than one individual substance.
I presume this means you can continue to take Biotin?
Hi, a note about taking supplements My daughter (no connection with ms btw), has had digestive problems for a while and last year had her gall bladder removed. She is no better and thought it would hep if she took supplements…one of which was magnesium
She saw her specialist again last week and he told her to stp taking supplements.
They dont always suit everyone. They do need to be taken with caution and your gp`s knowledge and preferably approval.
I did report this last year, and it is mentioned in my Biotin Blog:
The French company responsible for the High-Dose Biotin concept have put out a list of all the tests that can be affected if a person is taking Biotin:
I have to have a Fasting Blood Test on Monday (I am currently on a diuretic), so I stopped the Biotin as of yesterday and will resume on Monday after the blood draw.
I am really glad that I helped you out sewingchick. I really like the biotin as it gives me so much more energy. Last year I started taking biotin and weekly B12 injections. I was not low in B12 but persuaded by neuro to let me have it as it improved fatigue. I have just had a new MRI and the high signal lesions that have been present on my cervical cord for 5 years have gone. Also the one and only brain lesion that has been present since 2013 has reduced in size. I am waiting to see my neuros take on it.
I have only just been diagnosed with MS by a London Private Neuro but this was before I had this scan. Although he wants me to have another LP to help confirm the diagnosis (last 2 were negative for OCBs). I reckon he must still have some doubts.
I am going back to my local neuro in a fortnight who doesnt think I have MS. I have not spoken to him since I went to London and I am interested in his reaction. London neuro wants me to go on tecidifera. Yet I dont feel I fit RRMS - I did have a relaspse in 2008 got better, then started a slow insidious decline from about January 2010.
Sometimes I think I have Sub Acute Combined degeneration of the Spinal Cord due to B12 deficiency which is extremely rare. I have read that following high dose B12 therapy cord lesions can recover. Function can recover if caught early enough. I have had it for too long - it was 2005 when I first went to my neuro with fatigue and numbness and due to clear MRI and LP I was sent in my merry way.