I havent had a great year since the summer. The hot weather triggered sensory symptoms which appear to have become permanent they are just annoying but can manage with them.
I developed double vision a couple of weeks ago I’ve been told it’s time I started getting used to the double vision as it “may” never get better. Lots of prism strengths were tried but none helped my left eye has been weakened by the recurrent attacks of ON.
I have to close my left eye when watching tv, reading etc it tends to drift down and then deviate out it is the weaker eye. This adds more stress to the right eye which is the stronger in vision and has always recovered from attacks.
For the past few days I have been very fatigued I can’t even hold onto a cup of tea or food until I had finished consuming them.
I only hold a cup now when I’m going to take a sip otherwise I’d drop it same with eating. I am finding it very hard to come to terms with these symptoms. It’s very hard to explain when family members ask questions it’s symptoms they do not see how would they expect to understand them.
I am starting to lose control over my emotions I can get very agitated with anger which is uncontrollable I am not strong enough to accept that these symptoms will not get better. I’ve tried to stay positive but to no avail I have days of sadness, anger and happiness.
I just wanted to ask people who suffer from similar symptoms how they manage day to day activities. I’ve had to take short stops whilst typing this thread which has caused me to become upset this is not me or who I used to be.
I am currently undiagnosed I would really appreciate any help on how I can possibly try to convince myself everything is going to get better.