The Weakness and Fatigue is debilitating🥺

[Clickmates]

Hello, my name is Daniel, I’m married with a beautiful 10yr daughter. Where do i start because there is just so much to say.

2/23/2027 was the day that changed my life forever. I was walking down a hiking trail with my family and about half way through I felt a slight ache in my lower back basically hinting I was getting sick. 1hr later I was in bed feeling so sick but I didn’t show any signs of normal flu symptoms like coughing, sneezing, runny nose or sore throat. I didn’t even have a fever but I remember Dr it reading on avg 99.6 but it sure felt like I had a 104t emp. So 2 weeks go by with no improvement even when take Motrin I would feel so sick. After 3 weeks of suffering I went to get test done and what came back was low vitamin D but it wasn’t that low. The normal range is 30ng to 100ng and I tested at 27ng. Ok so I have low D and that’s ok so I start taking vitamin d as recommended by my gp. I a solan of 8 weeks I would get better for 2-3 days and then crash again. The fatigue, full skeletal deep bone aches, tingling fingers, numb right thigh and just feeling so sick and then it get worse!!!. Week 9 my symptoms changed but the fatigue and weak feeling has stayed. I’m now dealing with surges of tingling throughout my body and then it surges into my brain and I instantly become irritable and I can’t think at all. My brain has literally went to sleep so the only thing I can do I shut down and go to sleep. Today I’m having another surge and this lower back ache, tingling, iritabilrt, extremely weakness in my arms and fatigue throughout. I then get retested and now my vitamin D levels are normal at 72ng but my TSH thyroid levels crashed to .03 which is very low. Long story short I’ve now been diagnosed with MS and I’m sure it’s the debilitating one but that’s ok with me. I’m gonna push on because I have a family to support. I work laying down on my couch all day trading large cap stocks. Yesterday was the first day I could actually get myself to go online and make some trades without having my nerves go haywire. Trading is stressful so I guess if my nerves are shot because I’m having a relaps or surge my adrenaline is going to wreck havoc on my already over sensitive nerves. I guess the stressful
Part is I’m the breadwinner and my family is having a very hard time understanding what I’m going through. Can im anyone remotely relate? Thank you all so much for taking your time out of your day to read my post. Sincerely and with Warm Regards Daniel

[alison100]

MS has a nasty habit of rearing its ugly head just when people have established themselves as adults in the world with all the work and family responsibilities that go with that. You are not alone.

I don’t know much about your line of work, and you don’t say whether you are trading other people’s money as an employee or your own money on your own behalf. Or something else again. But I can understand why you are anxious about how well you are going to manage in this new world when you can perhaps no longer rely as much on your mental energy or acuity or capacity to assimilate and act on complex information at speed, hour after hour, day after day. I can see that your situation is difficult.

All I can say is that your family is your family, and it sounds as though you do not find it easy to take the people around you fully into your confidence. You are right: MS is a tough one to explain, and particularly when strong emotions like fear for the future (yours and theirs) are running high. It is easy to push people away because you think they won’t get it, or you remain convinced that you can just power through and make it OK without involving those who love you. But a life-changing dx like MS really is one that most of us cannot deal with alone.

GOod luck with it all.