Thank you to those of you who helped support me through a particularly difficult patch when I joined the forum about 6 weeks ago. I was waiting for tests at the Royal Hospital for Neurology. Great news! I have my date, and I go in on Tuesday for about a week of tests. They are going all out - central nervous system, autonomic, peripheral - you name it they are testing it. I’m not looking forward to some of the tests - tilt table, sweating test - but I know that at least I will have more info at the ned than at the beginning. Quite looking forward to the MRI though - I find them curiously relaxing!!
Thanks to the helpful advice I am going armed with questions about erythromelalgia and whether this is a result of damage to my nervous system caused by MS.
Hopefully at the end of it I might even get some answers and a diagnosis.
Wishing everyone well,