I’ve been browsing these forums for a few days and am thrilled to see what an amazing community you all have here. So I wanted to share our story and hopefully get answers to the questions you have on a new diagnosis.
Myself and my partner A recently just became home owners. The whole process was so stressful and completion dates kept being pushed back. One morning my partner woke up his vision had gone double. Now I work for an opticians and put it down to a visual migraine. The next morning it was the same so he went to the Drs. The GP was more concerned about his blood pressure, which was a result of a half hour walk to the Drs with double vision. They dismissed him completely. So he came to my work and one of our locum opticians saw him. He was showing definite double vision but the locum put this down to a virus. I wasn’t happy so waited until the following day to speak to my boss who insisted he go immediately to the hospital eye department. His vision had deteriorated significantly in 24 hours and a fresnel prism was given to him. He was found to have optic neuritis. Due to As age (28) they wanted to investigate further so he had a MRI scan booked in. This took ages to come through and about 8 weeks after getting his glasses his vision had returned to normal. The MRI scan showed lesions on his brain so off to neurology we went. Unfortunately this appt took ages to come through. I suffer with anxiety myself and due to the stress with the house move was on happy pills. With the added stress of worrying about A, my anxiety got worse. We went to the gp together and they advised us to prepare for an MS diagnosis. It felt like our world had fallen apart. We just brought a house and wanted to start a family and now this terrifying disease we know very little about will change everything.
When we eventually had his neurology appt. looking back at As history the dr has identified 5 different ms attacks. 2 over the last few years then 3 this year, ranging from leg numbness, hand and arm numbness, his vision and sickness caused by sudden head movements causing his vision to go double. The dr has diagnosed him with mild MS.
Now I’ve rambled on for ages (apologies) my questions.
What is mild MS? He said there is no need for treatment at this moment in time as A is fit and well but that treatment may be needed in future. Does this sound like relapsing MS? In which case is that better? What can we expect from everything. I’ve read up a lot but find a lot of what I read terrifying.
I love him dearly and will stand by and support him whatever happens. We are aware that while he is doing ok now, this could change.
I feel selfish posting this as its him that’s going through this. But how do us partners come to terms with such a diagnosis. I’m so scared of what might happen to him and seeing his go through any pain.
This is doesn’t even make any sense. I’m sorry. I’m just scared, anxious and want to know what will come next.
Thanks in advance