I would like to know if anyone has the exact same symptoms as me and what medication they got to remedy the problems.
My symptoms are as follows: abdominal shaking and tremor radiating into arms and neck. Variable stabbing pains that feel sharp and prickly all over especially legs. Have basic blood tests come back with inflammation markers and things like low iron, indicators that you are not absorbing nutrition from your food. Have feelings of abdominal pain, tight sensation near liver, your heart beating through your chest. Muscle fatigue from your body constantly muscle and nerve twitching. I also had a fall recently and noticed my bones were softer. I have lumpy shin bones with a grove in. Like a person with a vitamin deficiency.
Have you discussed all this with your MS Nurse and with your GP?
1 Like
I don’t have an MS nurse and there have been lots of conversations with doctors but I find everything is lacking. This has been going on since 2008 I had a gait at the beginning and felt like a stroke victim. There was no physio and I didn’t even get hospitalised, I think I didn’t eat for a week. I’ve had pain medication but I don’t like increasing my addiction levels and I’ve had pregablin but a lot of stuff just gives me nausea. I was in the middle of some scans until the GP threw me off the database and I had to register recently again and don’t have results yet so that process has to start again. Seems like no one cares or wants to spend any time decoding the array of never ending stuff that comes with MS.
Have you been referred to a Neurologist and have you had a MRI scan?
Yes diagnosed with brain scans since 2008. The care has still been very lacking. It goes no where, you get a period of lesser activity and they bounce you off appointments. Then the whole process starts again where no one knows what they are doing. Why?