So i wanted to say a big hello. Im lee 49
I was diagnosed in 2018 and have been left to deal with this all alone there has been no help from anyone yes doctors are okay if you play ball and take your meds like good little sheep but the minute you say no they drop you so quick. I have never had relapses as my m.s went from rrms to secondary pretty quick now everyday i live with the unknown what will happen today. I was reading about the m.s hug thats what prompted me to write. My ms hug has never left i have had it for over a year now i take diazipam to help and it does but not all the time. There are no groups in my area i am here alone with no support. No one to discuss things with and just to get some recognition that im not alone with what i experience daily.
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Welcome, Lee. It seems that those with SPMS do seem to get abandoned by doctors because they have little to offer. I don’t have SPMS, but I’m sure others will be on here soon to say hello to you, and offer their experience and support.
Hi Lee
I’m also SP ms and I totally understand everything you said in your post.
Take care
I went to see the team at Walton Neuro Liverpool. I asked was there any medication to take. I was told there was nothing that could help.
10/12 years later I am just dealing with RRMS on my own. I eat a plant based diet, take a lot of vitamins, get a good sleep 9 hours a night.