Hi everyone - I hve been on the site for around 2 years now and find the advice help and support invaluable.
I am having a particularly stressful time and the moment and am finding it difficult to find solutions and make decisions with all thats going on.
T o get up to date I saw a neuro at my local hospital at the beginning of the year and he did the relevant exam etc..
I complained of muscle stiffness particularly in my legsa and I have a internal tremor in my head left hand side not visible this comes on after sleep in ewarly morning. It did not go well he just did not seem to hear me, put the tremor down to migraine and after checking reflexes assured me legs were ok. I got on with my life throughout the summer but my legs are so weird the stiffness wont go...... went back to my gp who wrote to thew neuro dept direct to the ms specialist there and he said given previous consultation he did not feel he could do anything more!!!.
I am so upset I could pay to see this consultant privately but not surehe is obviouslys going to know my history.
But I dont want to go farther afield, I am extremely anxious of driving/travelling and want to be treated as near as poss.
My GP just seems to make things worse, the diagnosis from the neuro at the beg of year was suspected CFS with somosensory anxiety... and poss CFS management may help. My GP has arranged for a CFS fatigue management
appt but I feel this is sending me in the wrong direction causing stress but what else do I have at the moment?
In the very beg I did see a neuro who did a mri of head only - I have asked if I can go back to him but he is reluctant due to comments of other neuro I cannot see this one privately.
The CFS appt is not with a consultant ie someone who can diagnose but Im thinking they will see it is not CFS.
On top of this I have been called for Jury Service. I would appreciate any different approaches or advice
I dont want to waste my money on seeing the neuro privtely but know someone needs to see me physically
my A game seems to have desserted me in my hour of need ty