Hello folks - I have a question about what to expect from steroids.
I posted on the PP forum a while ago, asking about a course of steroids I was just about to take. Someone said then I’d get more info from the RR forum as you’re more used to them. Well, a few days ago I finished 5 days of 500mg/day Methylprednisolone. The neuro said it probably wouldn’t do any good (I’m not having a relapse as far as I can tell and I think I have PP), but there was an outside chance it would have some semi-permanent good effect. I think he was maybe trying to flush out whether I had PP or RR. In the end, they did no me good at all, and now I’m off them I’m worse. I read that withdrawal is a problem. I felt like death for the first 3 days after stopping but I think I’m coming out of that now. The big problem is my legs - They seem quite a lot worse now than when I started. They are so weak and wobbly. Is this to be expected? If so, any experience on how long it takes to go away?
Many thanks for any experience you can share.