I was diagnosed in December with R&R MS. What a shock! I feel that things have been such a whirlwind since then. I have been so grateful to the NHS who have placed an amazing team of people around me.
A couple of weeks ago I decided to use medication to aid my support and opted for 3x week injections.
On Wednesday an amazing nurse came to the house and gave me a 2 hour tutorial on injecting. We ended the session with my first injection. Tonight I went solo and have just completed my 2nd injection, the first unsupervised! Not sure I have got the technique quite right - pressed down a little too much I think (a bit ow, now!), but I am sure I will get the hang of it… well I don’t really have much choice!
Just wanted to share my story, and to say thank you for all the support on here.
Thank you
Louisa
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Hi Louisa, good to hear you are getting good service from the NHS.
The injecting will probably take time to get the hang off. Then you`ll be doing it with your eyes closed…easy as pie!
Yes, this forum is a great boon to all of us.
pollx
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good luck louisa
my best tip is to keep your skin moisturised because it helps the needle go in smoothly.
carole x
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Hi All,
18 injections,and 1 month on (and a little bit ), wanted to say thank you for the advice and support. Can’t say I am enjoying injecting, nor that I am use to it, but I’m doing it and building a routine. Keeping my ‘jab diary’ and trying to be brave. Good luck to everyone who goes down this route. It’s just about redefining 'normal '.
Stay strong, all
Xxxx
Louisa
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Hi Louisa Glad to hear you are getting on well with your injections. Just like you I was diagnosed with RRMS late last year through my works private medical and after a long wait of being referred to NHS neuro and nurse, I have finally decided to go down the Copaxone route. I initially wanted to try Tecfidera but decided not to because of my borderline lymphocyte count. I am assuming you are on Copaxone. Was this your first choice? I’m feeling quite nervous about starting this course but also want to get going with medication. My symptons at the moment I would describe as mainly clenching around my scalp and upper body at different points in the day lasting for about 20 mins or so. Not had any episodes so far that have taken me off work. Like you my diagnosis was such a shock but with the help of this forum I am coping well. Angela
Apologies I sent my message on my phone and I did put in lots of paragraph markers but it seems to have come out in one long paragraph!!!
Hi Louisa,
Great that you have started medication. I too started injections 3 times a week.
However the fantastic news is that I have now transferred to tablets instead - tecfidera . It really is great, no more injection marks and they are just as effective or perhaps slightly more than the injections.
So I would suggest you ask your MS nurse about switching if you think that could be the right way to go.
hugs
min xx
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Hi Min,
Thank you for your message. I think I will talk to my nurse. Have you experienced any side effects with tecfidera?
Thought I would be ok on my injections but am thinking I might be interested in chaning.
Louisa
Hi Louisa
Sorry to hear you are thinking of swapping to Tecfidera. Are you on Copaxone at the moment? Why are you thinking of changing?
Ang
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Louisa,
Really really pleased I switched to Tec from injecting 3 times a week. No brainier really for something just as if not more effective.
you ask about side effects. Well I initially had problems with nausea - this was better when I ate with the Tec. Maybe went on for a couple of weeks and then resolved. Now no nausea even if I don’t eat so that that sorted.
I occasionally had flushing - but found that nice as I like being warm.
Also I have odd small rashes on both of my cheeks. Don’t know whether this is the Tec but I blame it.
So really nothing major for me thank fully.
Good luck in your decision sometimes it’s difficult to know what to do for the best. As I trust my MS nurses I tend to follow their guidance.
hugs
min xx
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Hi Ang,
Thank you for your reply. I am just not liking any aspect of this. I have not fear of needles or injections, but I hate the bruising (am I doing it wrong?), I really dislike the after twitching and the 12 hours later itching! Just wondering if tablets would be better.
Opted for Copaxone because I thought it had the fewest side effects. Have an appointment with my nurse in 2 weeks and just wondered if it was too soon to consider something else.
I have now jabbed 24 times.
Do you inject, Ang? Am I just being a bit wet? Very tearful at the moment for no clear reason, and suspect I need to man-up a bit (woman - up!)