Having had SPMS since 2008 feel my little mobility is now fading fast. Feel upset clinging to what I still got and scared for the future. Differant from when I first got diagnosed 18 years ago with all the great DMD’s now its just giving me drugs to combat the everyday worsening symptoms. Do I look at putting in a wet room? Should I get a more suitable wheelchair for more permanent use, superlight sporty type?
Had to others cope with the future with SPMS?
Sorry for being a gloomy cow