I’m in shock. I have yet to see the neurologist but I have my MRI results to hand, and it doesn’t look good for me. I have lesions in the thalamus which is apparently rare, or associated with advanced disease. As well as in other places.
I’m currently on a mental health ward, but they are pushing for the neurologist to see me ASAP. They’ve told me all my mental health symptoms are likely due to the lesions. I’ve been in the system 8 years, and only now have they done an MRI. This because I developed severe nystagmus.
Im only 25 but it seems things are progressing at an alarming rate. My memory is shot to pieces. I don’t recognise some people’s names and faces, I find it hard to find words. My clumsiness has increased. I get splitting migraines every day. Pain relief does nothing.
Today I ache all over. My chest is tight. I was in A&E last night because I had severe palpitations and chest pain. They ruled out all immediate concerning things, but told me it’s likely because I have lesions in my brain stem. So…yes it could prove fatal.
Every day the nurses here update neurology, and still I’m waiting. But I’m a realist. I honestly don’t think much can be done anyway. I’m not sad, but that’s because my emotions are out of control. I have pseudobulbar affect so I just laugh uncontrollably. Which in my opinion, is far better than crying. I just feel bad for my family.