I recently had a Neuro appointment due to a couple of minor “episodes”. He detected a slight tremor in my left hand (I have been having sensitive skin feelings down the side of my left hand, left buttock and left foot) and has asked me to consider DMD’s. He has recommended Avonex.
I have always been quite proud of the fact that I have coped without medication and hadnt really considered my new “episode” to be all that major. The big shock though was the fact that I had somehow, in my head, always considered the cat that I may become disabled later on in life (I am 39) and had come to terms with the whole wheelchair issue, even cracking jokes about it. What I had NEVER considered was the possibility of my hands being affected. This would be far more disabling for me and it has really knocked me for six.
I dont relish the thought of being on long-term medication, but dont feel I am able to make that decision the way I feel about it all at the moment.
Not really sure what my question is - just feel better putting it in writing I suppose. I have always been a bit blase about the disease previously, but am now having to face possibilities I had never considered before - Feelig a bit down and confused.