I have posted on here before when in need of advice and found you guys have come through, so I thought I would put my situation to you to find out what you guys think.
I was diagnosed (Properly) in June. I have been offered Tysabri but refused and accepted interferon injection instead which were made avaliable to me in September, I have however not started these injections due to a sinus issue which I didn’t want to make worse with the side effects from the injections which in hindsight may have been a mistake as I still have the sinus issue after 3 months of anti-biotics, ENT have seen me and given me a CT and an allergy test due for January.
I have not had my flu jab this year due to being ill and on antibiotics at the time of it being offered, I have discussed this with my nurse who understood my reasons for being apprehensive and supported my reluctance to start interferon injections whilst my sinus problem was ongoing but it has dragged on and I am still ill with sinus issues and my MS seems to be on the attack as I have just had to go to emergency eye clinic and had confirmation of a second attack of optical neuritis, the first attack took my sight in my right eye so I am terrified that going blind is a very real possibility.
I have been given steroids and told to come back in 5 days, they did discuss admitting me for intravenous but decided against that, my neurologist was apprehensive to give me steroids as it would possibly make my sinuses worse but then obviously losing my sight is a bigger issue I guess.
I have never felt secure in my care from Doctors, they left my eye last time and it never came back, it took them a year to half ass diagnose me, then 3 months to confirm diagnosis then 2 months to offer me treatment even though I have been offered the more aggressive treatment, I was told that my symptoms were probably stress related and just got thrown about from pillar to post.
I just need some reassurance really, some advice, some similar stories? That would be great if anyone could provide that, totally sucks so close to Christmas.
Thanks so much for reading.