# Scared to Death

**URL:** <https://forum.mssociety.org.uk/t/scared-to-death/11916>\
**Category:** Everyday living\
**Created:** [29 December 2017 15:01 UTC](https://forum.mssociety.org.uk/t/scared-to-death/11916 "2017-12-29T15:01:07Z")\
**Posts on this page:** 2\
**Page:** 2

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**Author:** ![Optimistico](https://avatars.discourse-cdn.com/v4/letter/o/a6a055/32.png) [@Optimistico](https://forum.mssociety.org.uk/u/Optimistico)\
**Post date:** [6 July 2018 07:32 UTC](https://forum.mssociety.org.uk/t/scared-to-death/11916/21 "2018-07-06T07:32:40Z")

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Hi Ian

Glad you have finally had the tests done and well done for taking those steps.

From memory (such as it is these days!) I seem to recall I had a bit of a gap of about two months between the first MRI and the follow-up appointment to look at results although I wasn’t particularly bothered at the time as my symptoms coincided with a football injury and that was all I thought was going on. How wrong I was when the nice Neurologist concluded a clinically isolated syndrome. The lumbar puncture was rather quicker turn round but mainly due to the fact that the lab at Charing Cross lost my samples… (twice, sigh). I guess it all depends on how proactive your Neurologist is - sorry can’t be of more guidance but it’s not going to be consistent. I completely understand where your head is going to be at with the uncertainty and empathise - we have all been there (and probably still are to some extent). Sounds a bit hollow and pithy but really try not to worry and concentrate on the positives in your life and what makes you happy.

Take care

Dru

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**Author:** ![reddivine](https://avatars.discourse-cdn.com/v4/letter/r/dec6dc/32.png) [@reddivine](https://forum.mssociety.org.uk/u/reddivine)\
**Post date:** [6 July 2018 09:06 UTC](https://forum.mssociety.org.uk/t/scared-to-death/11916/22 "2018-07-06T09:06:57Z")

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Ian - as far as i can see, you have Dr Googled yourself and got into a fearful strop over something which may NOT be MS. Did the GP refer you to a neurologist? The eye problem seems to be the worse and I have to say, seeing a opthamolgist may be advisable. Did you see an optician? Mine saw the beginning of cataracts back in 2012 - had the op - much better. Its really a postcode lottery as to when/if you get test results, letters from consultants etc. Just hang in there - and try not to self diagnose.

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