Hello all, My name is Kylie, i’m 22 years old and I got dignosed with PPMS about three weeks ago now.
My GP thought I was suffering with Epilepsy and this is how I was actually dignossed with MS.
I’m just trying to get my head around what are and arn’t symptoms due to my MS, Please could you help me out? I have been suffering with the odd symptoms now and then since I was at the age of ten, which my mum made me believe that I was imagening them all, so I started to believe that all these weird things that was going on was normal, because my mum wouldn’t get me cheaked out.
First I suffer with really bad fatigue, I can have a good night sleep then wake up and within an hour I feel really tired again, this is without doing anything, it is alot more worse if I get up and do things.
Weak legs, No matter how far I walk my legs get really weak and causes me to collapse, sometimes this causes me to black out due to the amount of pain i’m getting with this.
Diplopia (Double Vision), I am suffering quite badly with my eyes, causing to suffer with headachs, nausea, vomiting and more fatigue, my optitions have had to put prism into my glasses to try and prevent this, I have been to my optitions again today because the double vision is once again over lapping the prism, bearing in mind this is the third time in four months that I have been to see them about this situation, but now the colour in my right eye is starting to fade away, as if the room is all cloudy, they told me that the guy who see’s me wasn’t in untill monday and explained to me that they might have to patch my eye up. I find out what will happen about this on monday.
Acid when burping, I don’t know if this is a symptom, but I have suffered with this since I was little, my mum always told me it was because I used to eat to many sweets, even though on some days when I suffer with it I dont eat any sweets at all, so I didn’t understand what she was on about.
Spasms, Aches, burning, and shooting pains, When I was about 1,1 I used to go to bed and get up with alot of pain, only on one side of my body, My mum said it was because I have slept wrong, and I sometimes got an electric shock pain going from my neck right down my spine my mum told me not to move my neck to quick.
Dizziness, I always have suffered with this, I’d get up and get that dizzy where I’d fall and be unconsious for a few mins, or even if I had a nice hot bath, mins after I get out I would then also got rewally dizzy and collapse, my mums saying is don’t move around to quickly But now I follow my mums advice and it still happens. I dont know what to do, any help on this?
Bladder problems (incontinence), This is only a new thing that has recentaly started, I sometimes cant make it in time to get to the toilet and accidentally wet myself, this is where I suffer with anxiety because I get scared to what people think if they notice that I have wet myself, Exspecially being only 22 and at college, my GP is trying his best to help me with this, I am now on medication to try and help prevent this.
Speach, this is the least of my problems though, I sometimes know what I want to say, but when I say it, I say something compleatly different, or if I want to say something and I see some other writing on a poster, I end up saying what is on the poster rather then what the conversation is all about, does this have something to does with MS?
These are all the main syptoms I have at the moment, but I am just worried about one thing, Two days ago I have some bad spasms in my right shoulder, and yesterday and up to now I have been in alot of pain with it, I can’t move my neck reach out or hold things with out it sending an bad shock all the way down my body, My friend told me to go to A + E about it because it may not have anything to do with my MS, what do you think I should do?
It is a big jump from Epilepsy to finding out it is MS instead.