Looking for kind words as I am facing another reinvention of myself, this time acknowledging and facing up to more physical deteriotation. I’ve previously mnaged to cope and stay on 2 feet but that doesn’t feel safe any more. Mulling over how to come to terms with this and its implications for health, fitness, mental outlook etc etc any pearls of wisdom from anyone?
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Not exactly pearls from me, I’m at an earlier stage. I’m so sorry things have got worse.
You say it’s “another reinvention”, what has helped previously?
Are you able to focus on what you can still do, and perhaps consider whether there is anything new you can take up that would work with your current limitations? More prosaically, on the fitness front, can you find exercise that does not require you to be “on two feet” - perhaps gym equipment with seat? Is swimming an option?
Hi there and thank you for responding. Yes swimming has been my go to exercise for the last 10 years or so. Getting in and out has now become difficult/dangerous and saps my motivation so I am wondering about gym equipment with seat so thanks for concurring 
I must allow myself the time and space to think/mull/plan Thanks
My MS has been stable for 15 years, but I well remember the last big downward lurch that brought many loved things to a permanent screeching halt and your post brings it all back. And of course it will happen again to me too with time and keep on happening because that’s just the name of the game for all of us.
Absolutely no pearls of wisdom to offer, I’m afraid. I don’t think there’s anything nice to say about the process of dealing with those big changes - it’s filled with pain and grief and there’s nothing nice about it. I am sorry that you are facing one of those difficult times now.
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It might be worth getting a physio to check you out and suggest some muscle strengthening exercises. Also, some time with an occupational therapist would be well spent, as they can advise on equipment needed to keep you independent.
Occupational therapy - NHS
I hope you get the support you need.
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Hi and thanks for your response, much appreciated