just need a rant. I’ve had enough. Early 40’s, diagnosed 3 years ago, but have had it for 9+ years. Main issues are bladder and bowel issues and a weakness in my left leg leading me to limp sometimes.
for the second time in 10 days I’ve had diarrhoea and not made it to the loo in time. I’ve just had enough. I’m single (is it on the first or second date you tell people you use a catheter to pee and don’t have much control over your bowels???), and had been contemplating ivf (see above re being single) but now I realise how selfish I’m being. What kid would want a mum who could have a relapse at any time and in any case just (removed by moderator). themself with no notice. Admittedly the diarrhoea is rare, but I have bowel urgencies fairly regularly (I use suppositories on a daily basis to try and avoid that, but thdre’s nothing I can do about the diarrhoea).
it’s just (removed by moderator). that they can’t do anything about it. They can put men on the moon, but they can’t give us a halfway decent quality of life. I used to run and loved going for long walks, but now I’m scared to do anything in case I suddenly need to pee or have a bowel movement. And no one really understands. You tell people that you can only do a 30min walk and they still bring you out on an hour’s walk, so you end up with a UTI because of urgencies and you’re limping by the time you get back to theirs. I mean, just because I look ok, why can’t people listen to what I’m saying?
i dunno, sometimes i just think the best of my life is behind me. The future just looks bleak.
sorry, but I’m just so fed up with this illness and needed to get it off my chest.