**Updated: Progressive MS but Consultant / Nurses can't make up their minds

Hi GCCK,
I too have the issue of ppms although they have never said but I know as no attacks since first onset 2001. Diagnosis 2004. Long wait from the testing then as Ppms was called back then Chronic Progressive. MS nurses keep referring me to the GP but GP says not a specialist. True, as when trying to get help the meds offered do nothing as I have had them before.
Feel like an orphan being passed around. I used to have yearly appointments to see the professor Ms specialist top man in the country then. Have not been back since 2017 as all I got was… Nothing!
So what was the point in hauling my body all that way to be told nothing.
Beats me… Frustrating totally frustrating…

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