I was diagnosed with PPMS about 15 years ago which has caused a weakness in my right leg, but that is all. Last August my wife of 46 years died and since then my mobility has worsened and I’m unable to stand up straight. I can walk a maximum of 60m and have been told my the MS nurse that this is an increase in my PPMS due to the grief a shock of her death. The only medication I use is tizanidine to reduce my leg spasms at night. I tried to talk to the MS nurse again to ascertain if I would improve and was just given a website to visit which told me nothing.
Has anyone experienced similar changes in their PPMS, if so did their mobility improve with time?
Hi randy.coldham Well firstly I’m so sorry for your lose, sounds like you been married for a similar time to me and my hubby and I don’t know what I’d do if he went first, he’s my carer, but I’m not talking about care, I’m talking about the emotional side of things, I’d be in bits and I’m guessing you’re the same, which is very sad.
I can’t answer your question about whether you’ll improve and honestly can’t believe your MS nurse just gave you a web site to look at, but I dare say no one can answer the question you need answering, but I’ll keep my fingers crossed that someone on here can, good luck and take good care.
Jean
So sorry for your loss. Grief will have a massive impact on the healthiest of people.
Maybe it might be worth looking into some physio to help strengthen the muscles in your legs etc this could potentially help make things easier for you. Also some counselling to help deal with your loss, this could help improve things as well. I think you have to focus more on how to manage and navigate what you’re able to do now rather than fixating on things getting better, or back to how they were.
I hope you have good people around you, and try talking to your ms nurse again
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Hi Jean
Had a call from my MS nurse this morning and on pressing her she confirmed that it is highly unlikely that my mobility will improve, after all I have progressive MS and it is progressing - silly me for asking!
I shall now see my GP re walking aids.
Ah well it is a lovely day out there so I shall go and have a stagger around
It’s not a cure but I wholeheartedly recommend MS ‘friendly’ diet.
See links below
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Hi randy,coldham, Well I can sympathise with you, I’m nrSPMS, now a full time wheelchair user, which I don’t like, but there’s nothing I can do about that, I have a lot of different symptoms and yes mine is progressing too, as so many on here are. Get all the help you can, physio, O/T, not sure why you’d need to see your GP ref walking aids, why isn’t your MS nurse sorting these thigns out for you, mine did, but hey it might be different in your area.
Good luck and take care.
Jean
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Thanks for the advice Jean. I am now steering clear of the MS nurses as they seem to be of little help. This maybe because they are 50miles away and in a different health area which was my fault for not going to the nearest centre. This is why I am seeing my GP in the hope that I can get re-refered to a closer unit in the same Trust area as it seems that while it is all the NHS the money does not flow between Trust areas.
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Well good luck with that randy.coldham.
Jean