Potential MS?

Hi all!

This is going to be a long story, so thank you to anyone who reads through this. I’ll start from the beginning. I’m Type 1 Diabetic and currently 29 years old.

Over 10 years ago, I first noticed issues with my knees and balance. I’ve since been since for Physio 3 times, of which nothing has helped. I’m now being sent to a Knee Specialist…

My knees give way on me now and have done for a few years. It can come out of nowhere but usually my knees start to hurt and then it goes. Luckily never seriously hurt myself (other than hurt pride when its in public!).

On top of this, about 7 years ago, I started getting Facial Palsy in the left side of my face, followed by about 5 years ago Neuropathy. They put that down to my Diabetes but when I had the electrode tests, they couldn’t be definite but put it down to it. I’ve had a brain MRI scan as well which shown no issues.

More recently (about 2 years ago) I started getting restless legs and cramps in my feet. I put this down simply to restless leg syndrome and the Doctors upped the anti-depressants for my Neuropathy as a result.

This past saturday however, things seem to have dramatically shifted. My knee gave way and they’ve now both been painful since, with the one that gave way have some restricted motion. I’ve been having tremors, blurred eyesight in my left eye and have been incredibly unsteady.

Now people may think I’m also quite lazy but I am constantly tired also! I could easily sleep my day away I’m always so tired. An example of this, on a Sunday I do my food shop, usually about 11am after getting up about 9am. By 1PM, I nap until about 5pm, followed probably by another at 8pm until 9pm. I then go to bed at 11pm and sleep straight through to the next morning. This obviously doesn’t work in the week when I work (from home) but I could easily do it then to.

Using the website Symptom Checker at Patient. Check common symptoms online. | Patient I’ve put these symptoms in (tingling toes, cramp, neuropathy, blurred vision, burning eye, tremor, unsteady, knee giving way, restless legs, elbow pain, stiffness, facial palsy) and the only result that comes back is Multiple Sclerosis.

As I’ve been passed back and forth between Neurology, my GP, Physio and other places for various bits and pieces of this, none of them have thought could it be connected but I’m starting to think they might be.

Therefore I’m wondering if this sound similar to anyone elses story on here pre-diagnosis or whether I’m being hypochondriac?!

Sorry for the long, rambling post but its all going on and I’m not sure where I stand.