I’m going out on a limb a little bit coming here, but I’ve seen my own GP, a private one, and now changed my NHS GP and we’re starting from where they left off.
Initially, my old NHS GP fobbed me off with ‘anxiety’. I went to him 18 months ago after I’d had a really strange incident at work one night. In May 2017, I was sat at my desk waiting to go home. Suddenly almost a ‘wave’ washed over my head, I suddenly felt dizzy/woozy, really unbalanced and my vision became really blurry. I stumbled to the car to meet my wife and I was so panicked, thought I was experiencing stroke symptoms or something.
Anyway, these symptoms have been with me 24/7 ever since - dizziness, unbalanced and woozy/brain-fog feeling has been ever-present for almost 2 years. At times, it worse and I feel like I can’t focus or concentrate, and my vision is really blurry and sensitive to light, some times I can manage. But over the past few months my eyes have begun to almost… quiver or ‘shake’ from side to side. I find it hard to focus a lot; lots of involuntary movement. Nothing that’s crippling but it can be very unsettling.
I had to take a couple of weeks off September 2017 as I thought it may be an eyesight issue, but eye tests confirmed my eye sight was still strong and I was only slightly long-sighted in 1 eye.
Following January, after pushing my GP that it wasn’t anxiety, I had an MRI. This showed nothing ‘of note’, and the neurologist told me I had migraines. Laziest diagnosis I’ve ever experienced.
Fast forward 6 months, I’m having really bad gastro issues, bloating, wind, etc. I’ve had to change my diet drastically. By September 2018, I’d lost 4 stone, was having awful breathing issues (feels like an abdominal/respiratory weakness), had vertigo, memory problems, tingling/itching in hands and feet, sleep apnoea-like symptoms, muscle weakness in arms and legs, problems concentrating, amongst many other things. Many of these come and go, the 2 constant are gastro issues,
I’ve had all manner of tests: 2xspirometry, 2 chest x-rays, heart echo, CT scan (abdo, chest, neck), manometry, upper GI. All have been clear.
As I said, my old GP was adamant it was anxiety, so I went to see a private GP / specialist. He was really angry about that ‘diagnosis’ and he himself is still adamant that I’m suffering what he refers to as ‘global autoimmune disorder’; he simply can’t pinpoint any particular ones. Also, none of the treatment we’ve tried has worked, and none of the bloods or tests have really supported this.
So my new NHS GP, asked me what my concerns were about this - I said that I’m looking at MS, or some sort of conversion disorder. He agreed, and said that that’s the route we’re probably going down now.
And that’s why I’m here! I’m just keen to know if any of the above is familiar to anybody?