I would like to know if there are any poeple on here that have symptoms,what they are ,and having trouble getting a diagnosis much appreciated 
Sorry Claire, your query is so broad-based, it would be impossible for anyone to provide insight. MS is incredibly hard to diagnose because it is so varied. Have a read on MS Soc, MS Trust and NHS websites for starters and see what you recognise from your own symptoms.
Up to 10% of patients who have neurological symptoms together with positive neurological signs never get a diagnosis ie. a name for their condition, as there are some rare conditions, the brain and nervous system is very complicated, and the tests available have major limitations. MS is one that can take a while to diagnose, but does generally have a pattern that neurologists can eventually pick up, and tick the boxes to reach a diagnosis. Doesn’t mean that all those diagnosed with MS do have it, or that those who don’t get a diagnosis don’t have it. Only at autopsy can they really confirm the diagnosis.
Hi Claire, you might find it useful to read through the before and newly diagnosis topic. That said as pointed out MS has so many diagnosable symptoms, which only a neurologist can say with some certainty.
Are you experiencing some symptoms that you feel are MS or has it been suggested by a doctor, or indicated by a neurologist?
There are many limbo landers on this forum, so don’t feel you can’t share your experiences.
That’s a good phrase - to describe a horrible state.
Psychologically, it’s confusing for me. I didn’t want the diagnosis and after receiving the diagnosis, didn’t want to accept it. For a month or so (between a Neurologist’s pronouncement and the appointment with a MS specialist consultant), did nothing and had to be nudged by my wife to investigate what MS was. I’d previously been diagnosed for 8 years with something that would be treatable.
So it’s strange and uncomfortable to see people appear on a forum such as this, who have already registered and logged in, saying they think they might have MS. It’s not something I would wish on anybody. By all means, do your research. Am I alone in feeling this way?
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I am new to the forum and sounds like i am a limbo-lander. I have had symptoms since September 2021 so around nine months - and have had extensive investigations: bloods, MRI head and spine x 2 which showed some changes in my brain and neck and a lumbar puncture which was inconclusive. Still waiting and seeing. The symptoms persist and are sometimes difficult to deal with. Basically the skin on the whole of my left side feels numb - the whole left side of my torso feels like it has a heat pad attached to it and my left arm and especially my left hand feels cold when its warm and hot when it’s cold. I feel like i have chilblains in my fingers but they are warm when people touch them. If someone else asks if it could be the menopause or Reynard’s i am going to thump them. I have to wear a long glove most of the time to feel some relief. The consultant says i could take gabapentine and the GP will prescribe it is I want it but I am not sure it is worth the it. Its frustrating and feels crap given that i am not even sure what difference a diagnosis will make. I am also very wooly-headed and often have to sleep in the day to keep going. Sorry I am having such a long moan but I am really tired of either telling people i am fine or trying to explain something without any explanation… AAARRRGGGHHHH
I am very new to this, I have no idea if I have MS no one apart from me has suggested it. I have a constant pain at the top of my arm and shoulder which at times is unbearable, my GP has prescribed Garbapentine which is helping numb the pain. i have at times pins and needles down this arm and sometimes tremors, i suffer memory loss and terrible restless legs although I have had this for more than 20 years and take Ropinarole for this. i also suffer from erectile dysfunction and occasional fatigue. I don’t know whether to get tested for MS or this is just old age creeping in. i am 63 years old but feel 10 years older. Anybody suffered similar symptoms ?
I completely agree with you, I thought it was a big fat brain tumour… no diagnosis yet but I’m getting worse fast… it’s not something you’re like do I or don’t I, you know…
Hi @Cushiecurran35 welcome on board. Just a thought might be worth starting a new thread of your own, you won’t get lost then in another conversation. Selfish I know but it helps us ms fogers not to get mixed up too 
Look forward to your next post.